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Prescribed Ofev, anyone have experience with this drug?

Lung Health | Last Active: May 13, 2023 | Replies (36)

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@rntichauer

My wife has pulmonary fibrosis, and as her symptoms started to worsen…..she was prescribed OFEV 150 mg , twice daily.
Almost immediately, she started having GI issues, despite sticking closely to all the dosing instructions.
After about three weeks of usage…..she wanted to stop, as the side effects were becoming intolerable. We reported this to her pulmonologist….. and he suggested stopping the 150 mg dose, and re- starting with a lower dose of 100 mg , twice daily. And see how that works out.
Just getting started now on the lower dose. Will update you all when we see more results.
Also, to those who are currently using OFEV 150 mg…..there is an option for a lower dose available.

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Replies to "My wife has pulmonary fibrosis, and as her symptoms started to worsen…..she was prescribed OFEV 150..."

That's good to know. I haven't been prescribed any yet. I'm going to wait a month or so to get over this pneumonia and see how the Actemra works for my RA. I'll definitely keep that in mind.
Carol