← Return to Essential Thrombocythemia: Looking for information and support

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@annetterzam

I was diagnosed in December of this past year. Same thing, Jak2 mutation. I tried some alternative things too, but nothing helped. I reluctantly went on 500 mgs of HU 3 x a week and have been fortunate. I've had no negative side effects and my platelets are now in the normal range. If you really need the meds take them. You don't want a stoke or heart attack. Actually your numbers aren't that high, mine were in the upper 600's. My doctor tracked my platelet count for 6 months and it continued to go up. Good luck!

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Replies to "I was diagnosed in December of this past year. Same thing, Jak2 mutation. I tried some..."

Thank you! Mine are in the low 500’s and he originally prescribed 1000 a day. After I though about it I decided not to take them until I saw him again which won’t be till the beginning of May.

Ugh I was put on 500 mg. To start more labs,1000 mg… now on 1500 mg daily. Platelets at 774 now!