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Prescribed Ofev, anyone have experience with this drug?

Lung Health | Last Active: May 13, 2023 | Replies (36)

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@kathy22

I have Hypersensitivy Pneumonitis, a formof ILD, Ofev was prescribed for that in the hope it would slow the progression of the disease. My understanding is it works in 40 to 50% of people with ILD. I have stopped taking it because now I am on the transplant list. It can wreak havoc with your stomach and cause Irritable Bowel Syndrome in a small segment of users. I was having occasional issues with it so was told to stop it now that I'm active for transplant.

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Replies to "I have Hypersensitivy Pneumonitis, a formof ILD, Ofev was prescribed for that in the hope it..."

Good luck with the transplant surgery. I know it takes a while on those lists. My sister is on an active list for kidney transplant. Hopefully we can all get the help we need. Lots of people to pray for!
Carol