← Return to Prescribed Ofev, anyone have experience with this drug?

Discussion

Prescribed Ofev, anyone have experience with this drug?

Lung Health | Last Active: May 13, 2023 | Replies (36)
Comment receiving replies
@ktgirl

Thanks for the tips. I'm curious as to why you were prescribed it and why you stopped taking it. I have some lung damage from RA and scleroderma and the doctor hopes it will slow the progression of damage.

Jump to this post

Replies to "Thanks for the tips. I'm curious as to why you were prescribed it and why you..."
kathy22 | @kathy22 | Apr 19, 2023

I have Hypersensitivy Pneumonitis, a formof ILD, Ofev was prescribed for that in the hope it would slow the progression of the disease. My understanding is it works in 40 to 50% of people with ILD. I have stopped taking it because now I am on the transplant list. It can wreak havoc with your stomach and cause Irritable Bowel Syndrome in a small segment of users. I was having occasional issues with it so was told to stop it now that I'm active for transplant.

VIEW AND REPLY