← Return to New DIPNECH diagnosis, need advice on doctors

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@rogo

It was very helpful and encouraging to read your comments . I have not met or spoken with anyone with the same diagnosis. I was diagnosed with Dipnech andNuroendocrine tumours all over my lungs 6 years ago . I thought my life was over then . I live in Toronto , Canada and Princess Margaret Hospital is a very highly ranked cancer hospital . My encologist is amazing and has been very positive and encouraging . She constantly assured me these are very slow growing tumours and people live long lives with them . I never smoked a day in my life and always had a cough. Unfortunately , last August I had a lobectomy as one of the tumours started to grow . They told me I could wait but suggested it would be a good idea at my age ( 70) to remove it . It was a gruelling surgery , but it’s done . I have a lot more tumours , so I pray they do not require additional surgery . I am having my 6 month Ct scan next week and I am paranoid. . I hope all is “stable “ which has become my favourite word . Judging by your post , you appear to be very knowledgeable and informed about this disease. I would love to speak with you further about this . With appreciation …

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