Dose anyone else feel like neuropathy is taking over their life?

I am 76 years old now, but if I was young, I’m thinking I wouldn’t be able to escape the world of pain and who knows what I might do

As it is , I am trying medical Marijauna. I suggest you might try it, and see a counselor who supports it.

There is a chronic pain forum on Facebook that I belong to. There are not a lot of severe pain forum options, and mostly support forums, but they can be depressing. Some people do find help, but it’s not easy. You might try hanging out on Facebook and check out chronic pain forums.

I do use marijuana. That is the only way for me to get real relief. It's really odd because for an hour or so, my joints and that type of issue hurts worse. BUT!!! the relief I get where my feet stop sweating and freezing while in pain, get red and warm and in pain. ha ha. That is the best it gets. By Counselor, are you meaning like psychiatrist? My PCP just said that she cannot work on anxiety due to the other meds for pain. It sounds like that is a route I may have to go.
Thank you for all of your help and support!!!
Thank you,
T

I wonder if my waking up in total bodywide sweats is akin to your feet. I get hot/cold almost within the same 60 seconds. I have that burning all the way up from my feet to my waist. I also have tingling and the weird almost electrical shock feeling, worse in my right hip.

I don’t say a psychiatrist , but a knowledgeable counselor who can help you sort out the steps. You need to establish a way to get disability; talk with people who know the way to make it happen. There are things we never hear that are well known to those people on the inside

I am not sure I understand about MJ, I really need to learn about it and what it will do. Also, my lungs are shot, so I cannot smoke, need chewies.

Gen

Yeah I sweat all of the time so I never thought much about it, but I have woken up all sweaty too. What's odd for me is that it's normally my head sweating the most. Yeah electric shock is how I would describe those sudden pains too. I get them in random areas. I will also wake up and that particular day, my left foot for instance the other day and I could swear I must have kicked the bed post or something in the night. I know I didn't, but all day it feels like I have a broken toe or two. The next day nothing. Odd.
Yeah I know what you mean. I like and am more used to smoking, but I cough way too much. I smoked cigarettes for 35 years. I just have not found edibles I like, but as powerful as it is nowadays, you may find that is all you can stand anyway. Small amounts. 😉 I never liked smoking too much or like after a weekend party or something, that would be all I wanted for a while. Now, I cannot imagine getting through a day.
Yeah I am now starting to work on getting an attorney that specializes or has knowledge in the disability area. Yeah if I have to stop smoking for 2 or 3 months, I don't know if I can so I can get hired. I am going to try Myofascial Release since a number of people say that helps. I am not convinced as massage and similar didn't work in the years before I was diagnosed. We shall see.
Yeah MJ helps me but take it slow I guess as with anything.

I would recommend setting up an appointment with a disability attorney and they will discuss your situation with you. Understand that there are a lot of factors that go into evaluating whether or not you'd be a good candidate for disability or not. (Type of work you do, other jobs that may suit you better within the company etc.) They shouldn't charge you for initial consultation as the attorney gets paid out of the settlement $. The attorney will also let you know whether or not you have a good case or not as they will not take your case unless they feel you have a good chance of winning your case, as that is how they get paid. My advice is to set up appointment with someone and take a shot. It will at least educate you on the process and you'll have an idea of what options you have

How can you stand this pain? I was absolutely going insane from suffering before all the drugs. They don't help fully, but man. Yeah I knew that these would be rough. Just having to increase my Gabapentin was really rough so I know what you mean but... Trying to work, even though I work from home, in IT. I cannot think anymore but I also couldn't in pain. I have two bad hips, two bad shoulders, two bad elbows, and my hands and feet... I also have bad enough arthritis everywhere, including my neck and lower back, that I think this pain elevates that pain to a level I just... I cannot sit at my computer worth a damn.
I also have tried ignoring it and trying to continue to do things. MAN!!! I cannot even describe what I feel like after doing 2 or 3 hours of yard work. I have also been laid off as of Sept. 1st. If I don't or cannot continue I lose out on this bonus I was promised. I have to struggle through but there is NO WAY I can sit in job interviews and actually tell people I am ready to work for them. Yeah it's getting worse faster it seems nowadays. Maybe it's been doing this for a while, but now it's more permanant where my thighs feel week and I wake up in a painful or uncomfortable "tingle". Thankfully I sleep pretty well I guess. As soon as I wake up, my feet start to get damp and cold and this "tingle" becomes intolerable. The only way I can explain it to people is having your older brother sit on your chest holding your arms down and hitting your sternum over and over. It starts to really hurt. I know I am awake then. 🙁 I have to get up. Then the pain gets worse over the course of the day. My anxiety is now helping to cause pain I'm sure. I have applied for an appointment to Mayo. Yeah my doctor seems to be of the mind there is nothing more I can do. Other than go to one of those chiropractors that unfortunately are on the other side of the city and pay out of my pocket. I have not done that and don't expect a lot of help but... I have not wanted to admit it, but I am thinking I might have to apply for disability but my doctor said SFN doesn't qualify well. ????
I'm sorry to just talk about my pain again. Nobody understands. I will and have started trying to find something else, but I have to work and that is not leaving much energy for anything at this point.
Thank you.
T

I wouldn’t be afraid of the disability application process. If you have ALL your medical records, just be prepared to spend a long time in front of the computer working on the government application. There are areas to describe your physical changes. You’ve done a great job describing them on this forum. If they need more information, they will contact you. You will also get periodic updates. Be prepared to input exact dates! The more info you give up front, the better your responses.
I applied BY ACCIDENT. I was applying to get my SS benefits at age 62. The line of questioning led me to the disability application. I was approved on the first try. In addition to the disability payments, I also was able to get Medicare early, which is a blessing.
Have a friend help you with it if needed. But you won’t know until you try.
The disability money is yours. You have been paying into it, and it sounds like your illness would certainly affect your ability to keep working.

It’s a trip to go to the nearest MJ store, so I’ll go on Thursday. Yes, my head sweats, I wake up and my head is absolutely soaked, hair could’ve been run under a faucet. So, you are so much the same, electric shock feelings and all, moving pains.

I had crazy thyroid readings and doing a follow up blood test for that. Thyroid produces crazy symptoms, what about you? Do you have a thyroid problem? Maybe get that checked?

Attorney might help. Good luck!

I think I’ll do research on sweating. So…stay tuned!

Gen

PS: I’ve been thinking about going to Mayo in Rochester, Mn. I was there once and was very impressed with them. But they have likely changed. If you go and I go, maybe we can talk them into doing a special study. However, since I am old, I’m having big trouble. I almost collapsed yesterday, couldn’t breathe very well. I am getting worse, so maybe travel is off the table of my future life.

Gen