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Post Exertional Malaise

Post-COVID Recovery & COVID-19 | Last Active: Jun 27, 2023 | Replies (20)

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@rinadbq

It is a HUGE adjustment! Going from ER Nurse in a trauma center working 12 hours shifts to setting an alarm so I know when to stop what I am doing at home. Just mentally wrapping my head around leaving work one day and not able to work the next. I tried going back to simple work in a vaccine clinic for 4 hours and was overwhelmed. At 63 this just may be retirement for me. I can't think of a sedentary 4 hour job.
Knowing where my limits are and what to expect is of great comfort-especially as this syndrome becomes more studied and accepted by the medical community. The first year was ridiculous!

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Replies to "It is a HUGE adjustment! Going from ER Nurse in a trauma center working 12 hours..."

Hi @rinadbq. I may have shared before but thank you for sharing from a medical professional standpoint your journey. I had really tough symptom day yesterday and literally crying this am while I should be grateful slept thru night and woke feeling decent. Tears from this unpredictable excruciating journey of no rhyme/reason, havnt worked in over year with no income, previously very active and helped other family members and now I have to pace taking shower or phone call for whole days activity. Your sharing is giving me drive to keep pushing forward. Thank you for all you did do and helping all of us now💖

I agree! I am a NICU nurse of 40 years that got Covid for first time in October. Hospitalized for 5 days and have had continued GI symptoms & extreme fatigue. Can’t imagine working again at this point but am in no way ready for my career to end either. I am a breast cancer survivor who fought like hell and was able to work again after that journey. Very frustrating how this can change your entire life in a heart beat. Have always been very active, been in leadership working full time in a busy ICU, 4 children, 3 grandchildren but life came to a halt last October. Like you said pacing every step of the day and paying dearly for anything you do over. Took 3 weeks to recover from a weekend that involved a funeral and a grandchild’s birthday party. I am truly blessed to have a Dr that understands to help make this journey manageable.