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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
I don't know the length of the current trial, but am hopeful that BC Pharmacare covers the cost when it eventually ends and the program stops providing it.
I can't over-state the improvement this drug has made in my quality of life in such a short time. I did quite a bit of physical work this past weekend. I was able to put away snow tires and also built some furniture bases, none of that would have been possible a month ago without many rest stops to catch my breath or stop the dizziness.
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That is so great @hansj! I had to have a septal and papillary myectomy. The drug was not far enough along for me to try and I needed help sooner than waiting would allow. I know from experience that it was mind boggling how I used to be able to _______________ (fill in the blank) but no longer could because of the chest pain, shortness of breath, fatigue, brain fog. Walking and having to stop more than 20 times. Short of breath hanging laundry on the line. Bending over to tie my shoes. You must be so encouraged with your progess. And no surgical scalpel in sight! I do hope you continue to post here so others who read about your progress may benefit. There may be somebody reading who has not even heard of Camzyos and they will be able to share this information with their cardiologist. So I take it that in Canada, the drug company is footing the bill for the drug cost and trial protocols, and after it is over you are not sure of what happens? And if you're putting away snow tires it sounds like Spring has sprung in BC 🙂