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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

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rose4622 | @rose4622 | Sep 19, 2018
In reply to @rose4622 "I am in a rehab facility near my home. They are filling my days with activities,..." + (show)
Profile picture for rose4622 @rose4622

I am in a rehab facility near my home. They are filling my days with activities, neurological land phys around my disabilities. The food here is not good for me. I had an allergic reaction to food yesterday. I would like to stay here a few more days but my gut is so enflamed with food and drugs that I may need to check out early. Or have family bring in food I'm not allergic to. I was in so much pain last night. I had to beg for benedryl its the only thing that helps with allergic reactions to food.

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Thank you all for your prayer and your support. 💕💕💕

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 19, 2018
In reply to @rose4622 "I am in a rehab facility near my home. They are filling my days with activities,..." + (show)
Profile picture for rose4622 @rose4622

I am in a rehab facility near my home. They are filling my days with activities, neurological land phys around my disabilities. The food here is not good for me. I had an allergic reaction to food yesterday. I would like to stay here a few more days but my gut is so enflamed with food and drugs that I may need to check out early. Or have family bring in food I'm not allergic to. I was in so much pain last night. I had to beg for benedryl its the only thing that helps with allergic reactions to food.

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@rose4622
Hi Rose:

I am sorry to hear of the allergic reaction to the food and meds. I know that was a concern to you. I hope that your family can bring you some food that will be better for you!

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rose4622 | @rose4622 | Sep 19, 2018
In reply to @hopeful33250 "@rose4622 Were the headaches an expected side-effect with this kind of surgery?" + (show)
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@rose4622
Were the headaches an expected side-effect with this kind of surgery?

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It was a possibility to have headaches or awhile. I will be getting a post op MRI next week. We will see if the brain is moving back into place.

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vickid117 | @vickid117 | Sep 20, 2018
In reply to @hoosier "Good to hear that you are doing well! Have been wondering! Will be good to go..." + (show)
Profile picture for hoosier @hoosier

Good to hear that you are doing well! Have been wondering! Will be good to go home! Keep us posted as you recover!

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So glad your surgery is over. I said prayers for you. Now it's time to mend. Take care of you and get plenty of rest. This will help you heal.Don't give up.

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rose4622 | @rose4622 | Sep 20, 2018
In reply to @vickid117 "So glad your surgery is over. I said prayers for you. Now it's time to mend...." + (show)
Profile picture for vickid117 @vickid117

So glad your surgery is over. I said prayers for you. Now it's time to mend. Take care of you and get plenty of rest. This will help you heal.Don't give up.

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I am being forced into taking care of me. I learned yesterday that I will be discharged from this facility on Sunday. I will be evaluated for healthcare at home, I am so ready to be independent again.

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rose4622 | @rose4622 | Sep 20, 2018
In reply to @rose4622 "I am being forced into taking care of me. I learned yesterday that I will be..." + (show)
Profile picture for rose4622 @rose4622

I am being forced into taking care of me. I learned yesterday that I will be discharged from this facility on Sunday. I will be evaluated for healthcare at home, I am so ready to be independent again.

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My biggest concerns have been over losing my balance nerve on the right side. However, the left side appears to be helping with loss of the right. I only get dizzy when I move too fast. P TL!

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angelmema | @angelmema | Sep 20, 2018
In reply to @rose4622 "My biggest concerns have been over losing my balance nerve on the right side. However, the..." + (show)
Profile picture for rose4622 @rose4622

My biggest concerns have been over losing my balance nerve on the right side. However, the left side appears to be helping with loss of the right. I only get dizzy when I move too fast. P TL!

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After discovering my AN in May, I've tried walking more and my brain has compensated and I'm not near as wobbly now.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 20, 2018
In reply to @angelmema "After discovering my AN in May, I've tried walking more and my brain has compensated and..." + (show)
Profile picture for angelmema @angelmema

After discovering my AN in May, I've tried walking more and my brain has compensated and I'm not near as wobbly now.

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@angelmema
I appreciate your suggestion and sharing about what worked for you. Did you have surgery as well?

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Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 20, 2018
In reply to @rose4622 "It was a possibility to have headaches or awhile. I will be getting a post op..." + (show)
Profile picture for rose4622 @rose4622

It was a possibility to have headaches or awhile. I will be getting a post op MRI next week. We will see if the brain is moving back into place.

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@rose4622

The post-op MRI sounds like a great idea. I'm so glad to hear that you are headed home this weekend.

I was especially interested in hearing you say how (regarding balance) the "the left side appears to be helping with loss of the right" I find that just amazing!

Just wondering if anyone else has found that one side of the brain helps compensate for the other side?

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rose4622 | @rose4622 | Sep 25, 2018

I am now 2 weeks post retrosigmoid craniotomy.. Did one week rehab and was discharged. Home health has not followed up yet. Today will be the first day I will be alone all day. A little Scary!

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