Anyone have any nebulizer recommendations?
Does anyone have any nebulizer recommendations. Would like something compact and easy to clean. Also any online sites that people recommend to get your supplies such as nebulizer and saline vials from? briefly looking it seems like there are a lot of options and they are fairly inexpensive.
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
I clean daily in hot soapy water, rinse & place on a clean paper towel. Weekly, I place a silicon mat (potholder) in the bottom of a saucepan, fill with clean filtered water & boil (gently) for 10 minutes with my Aerobika & and nebulizer (the cups if using compressor, the whole head if using the InnoSpire Go) then let it cool and store it. Others use baby bottle sterilizers or microwave steamer bags. I go for simplicity - I live in a tiny house, and can't handle having any extra stuff to manage & store.
Sue
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Sue,I purchased the cups you recommend=
ed and received them yesterday. I used a new cup with my Pari ProNeb Max and=
it took 20 minutes to neb a half a vial. Is that normal?Even tho=
ugh this is my second machine, maybe the filter is bad? Any suggestions?I will also contact the respiratory nurse here at Mayo that just retu=
rned from maternity leave and ask questions about the nebulizer.T=
hanks Sue for your suggestion and support.SallySent from my iPad=
On Apr 10, 2023, at 4:33 PM, Sally Baldwin <SallyB1947@yahoo.com> wrot=
e:=EF=BB=
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Sue,Thank you for your response. I used the ProNeb twice and called Par=
i and they sent me a new one. I had the same problem with the new one. The c=
ups do not let any of the vapor escape.Where do you purchase the c=
ups you are referring to that they use in the hospital?Do you Hav=
e the Pari Sprint?Thanks,SallySent from my iPadOn Ap=
r 10, 2023, at 2:26 PM, Mayo Clinic Connect <nf+3de3c181+151082518@n1.hub=
application.com> wrote:=EF=BB=BF
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Sue,
I purchased the cups you recommended and received them yesterday. I used a new cup with my Pari ProNeb Max and it took 20 minutes to neb a half a vial. Is that normal?
Even though this is my second machine, maybe the filter is bad? Any suggestions?
I will also contact the respiratory nurse here at Mayo that just returned from maternity leave and ask questions about the nebulizer.
Thanks Sue for your suggestion and support.
Sally
Sue
Simple and less stuff works for me also Thanks for this information
I wonder if anyone has been directed by their doctor to take muscinex/guaifenesin I take this daily, twice a day, 600 mg......one in the am, two at bedtime. I am not sure it makes any difference and I have not seen it mentioned as I read posts on this site
H. Evergreen
I have used it for many years, twice a day - since way back when it was a prescription from my ENT. It helps thin the fluid in my ears and prevent ear infections, as well as thinning the mucus in my sinuses and lungs. My pulmonologist was skeptical, but every time I have run out and thought I could do without for 2 weeks or longer, I get another ear infection.
Sue
Thanks, Sue! That is interesting as I just started using mucinex for the first time ever during a recent, and first, stubborn bout with covid - which ultimately led to my bronchiectasis diagnosis (2 weeks ago). I am making my way through the woods with information and wonder what dose you use of Mucinex/what is your protocol, as it seems to work for me, too.
Thanks!
Yes, I also had a question, Sue, where you mentioned boiling certain equipment for 10 minutes in sterilized water. Wouldn't the 10 minutes in and of itself sterilize the water? I am very new here!
Also, if I boil a big pot of tap water for 10 minutes (for drinking until I can figure out my home water situation re: NTM/MAC risks), and use it for both drinking and rinsing/cleaning equipment, should it be a new pot of water each day? Thanks!
Thanks Sue
I think you misunderstood. I use filtered tap water. And you are correct, the boiling takes care of any problems with it.
As for using boiled water, that is not something I do. But what I have read is use clean, covered glass bottles to store the boiled water, so it stays safe until used. When I can, or put up fresh orange juice, I clean my bottles by washing in hot soapy water, then rinsing with boiling hot water. I believe that meets with the approval of Dr Joe Falkinham, the accepted expert on NTM in water.
Sue
Thank you! I just got a lot of helpful info from him (though, still very overwhelming, 2 weeks in to the Bronchiectasis diagnosis). Would you mind sharing what filter you use? Thanks!