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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

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@csgreetings

Hi Darryl. My HCT (hematocrit - may have spelled that wrong) was waaaay out of whack and high. I had blood testing last fall and they failed to do a complete blood count (CBC). That's the first indication that showed it and will for most people. I started with a new physician and she ran the full gammit of blood tests on me to get a baseline on my health when I started with her a couple months go. Bam. There it was. Associate yourself with a good medical system. My preious doctor ran tests on me but NOT a CBC. No idea how long I have had this.

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Replies to "Hi Darryl. My HCT (hematocrit - may have spelled that wrong) was waaaay out of whack..."

I too had a similar issue with my primary care provider. I had already shown signs and symptoms but were ignored. Looking back at my previous test results I had already been off the charts for almost 2 years. It took persistence to advocate for myself to finally get an explanation and referral. I just hope it's not too late to manage it from progressing further.