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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (899)Comment receiving replies
Monthy echo's sounds like a good plan @hansj.
In my opinion, it takes courage to join a trial for a brand new drug, so I hope you will come back and let this group know how you are doing and how this is working out for you. A lot of people with HCM can benefit from your experience and that of others taking Camzyos. You never know who may read your post and benefit from your journey. Did your cardiologist tell you how long you will be in the trial? Weeks/months/years?
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I don't know the length of the current trial, but am hopeful that BC Pharmacare covers the cost when it eventually ends and the program stops providing it.
I can't over-state the improvement this drug has made in my quality of life in such a short time. I did quite a bit of physical work this past weekend. I was able to put away snow tires and also built some furniture bases, none of that would have been possible a month ago without many rest stops to catch my breath or stop the dizziness.