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Tingling/numbness in face, arms and legs. Walk isn't normal

Posted by lynn32 @lynn32, Aug 14, 2022

April 27 my right foot wouldn't walk right. One week later started feeling a weird sensation on my tongue. Then my right side of my face started tingling/numbness. Went to er thinking I might be having a stroke. Two CT and MRI came back normal. Days later I Gradually started feeling the tingling/numbness down my right arm. Then on to both sides. The sensation comes and go. My walk comes and goes as well. July 1 I started feeling really different. I was so fatigued. Two weeks out of the month of July I spent the majority time in bed. At one point I was somewhat lethargic. I've been to ER 3 times all test coming back normal. Had another MRI. A sono on my neck. A cortisol test and lots and lots of blood work done. ALL coming back normal. My local neurologist is trying to pinpoint it but not having much luck. I had a very mild case of Covid in November. Could this possibly be long Covid? I started taking black seed oil two weeks ago and do feel better but I'm still having tingling/ numbness that comes and go. Anyone else experiencing these symptoms?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 14, 2022

@lynn32, this must be frightening, especially when tests seem to indicate all is normal. A few things come to mind like Bell's palsy and Lyme disease. Have they been ruled out? Did you talk with the neurologist about a possible link to post-COVID infection?

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lynn32 | @lynn32 | Aug 14, 2022

Yes both of those have been ruled out. Neurologist does not think it’s long Covid.

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dbluttenb | @dbluttenb | Aug 17, 2022

Have them check for superficial siderosis. This is caused by a brain bleed. A primary symptom is ataxia, loss of balance. I have serious trouble walking.

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paktoledo | @paktoledo | Apr 10, 2023

I was just diagnosed with PN on Friday the 7th of April at Mayo Clinic. My legs and face are quite numb. I live in Owatonna, Minnesota. Any suggestions for a good neurologist in my area? Any suggestions of where do I go from here? Thank you in advance.
Pat

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 14, 2023
In reply to @paktoledo "I was just diagnosed with PN on Friday the 7th of April at Mayo Clinic. My..." + (show)
@paktoledo

I was just diagnosed with PN on Friday the 7th of April at Mayo Clinic. My legs and face are quite numb. I live in Owatonna, Minnesota. Any suggestions for a good neurologist in my area? Any suggestions of where do I go from here? Thank you in advance.
Pat

Jump to this post

Hi Pat, I glad to see that you saw my response in the other discussion where you posted. I also was diagnosed at Rochester Mayo (idiopathic small fiber peripheral neuropathy) but since I only have numbness there was nothing that my neurologist could offer for treatment. That's what brought me on my journey to Connect. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. You will notice we moved your post to an existing discussion which mentions face and legs numbness here:

--- Tingling/numbness in face, arms and legs. Walk isn't normal: https://connect.mayoclinic.org/discussion/tinglingnumbness-in-face-arms-and-legs-walk-isnt-normal/.

There are a lot of us with numbness only symptoms. There is also another discussion on numbness symptoms here - Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain.

The one suggestion I could make that did help me was to learn as much as you can about your condition and what treatments may be available. Sometimes a specific type of neuropathy may have different treatments that might help.

Did you get a specific diagnosis for your neuropathy?

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2 replies
paktoledo | @paktoledo | Apr 14, 2023
In reply to @johnbishop "Hi Pat, I glad to see that you saw my response in the other discussion where..." + (show)
@johnbishop

Hi Pat, I glad to see that you saw my response in the other discussion where you posted. I also was diagnosed at Rochester Mayo (idiopathic small fiber peripheral neuropathy) but since I only have numbness there was nothing that my neurologist could offer for treatment. That's what brought me on my journey to Connect. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. You will notice we moved your post to an existing discussion which mentions face and legs numbness here:

--- Tingling/numbness in face, arms and legs. Walk isn't normal: https://connect.mayoclinic.org/discussion/tinglingnumbness-in-face-arms-and-legs-walk-isnt-normal/.

There are a lot of us with numbness only symptoms. There is also another discussion on numbness symptoms here - Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain.

The one suggestion I could make that did help me was to learn as much as you can about your condition and what treatments may be available. Sometimes a specific type of neuropathy may have different treatments that might help.

Did you get a specific diagnosis for your neuropathy?

Jump to this post

No. I did however get a follow-up appointment at Mayo Clinic Owatonna, MN with the neurologist who performed my EMG in mid May!
Thank you for the information! I will look into the other sites you suggested. Pat.

REPLY
salpal01 | @salpal01 | Apr 17, 2023
In reply to @johnbishop "Hi Pat, I glad to see that you saw my response in the other discussion where..." + (show)
@johnbishop

Hi Pat, I glad to see that you saw my response in the other discussion where you posted. I also was diagnosed at Rochester Mayo (idiopathic small fiber peripheral neuropathy) but since I only have numbness there was nothing that my neurologist could offer for treatment. That's what brought me on my journey to Connect. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. You will notice we moved your post to an existing discussion which mentions face and legs numbness here:

--- Tingling/numbness in face, arms and legs. Walk isn't normal: https://connect.mayoclinic.org/discussion/tinglingnumbness-in-face-arms-and-legs-walk-isnt-normal/.

There are a lot of us with numbness only symptoms. There is also another discussion on numbness symptoms here - Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain.

The one suggestion I could make that did help me was to learn as much as you can about your condition and what treatments may be available. Sometimes a specific type of neuropathy may have different treatments that might help.

Did you get a specific diagnosis for your neuropathy?

Jump to this post

Hi
I have read that a low potassium count can cause numbness and tingling so maybe you could have your potassium levels tested and if it's too low your doctor will put you on a supplement which they did for me and I feel great

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 17, 2023
In reply to @salpal01 "Hi I have read that a low potassium count can cause numbness and tingling so maybe..." + (show)
@salpal01

Hi
I have read that a low potassium count can cause numbness and tingling so maybe you could have your potassium levels tested and if it's too low your doctor will put you on a supplement which they did for me and I feel great

Jump to this post

I wished I could chalk mine up to low potassium but my levels are good.

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paktoledo | @paktoledo | Apr 17, 2023

Mine too, John. Normal K+levels.
Pat

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briam | @briam | Jun 24, 2023

yes ive had these sensations for sometime now i dont know whats causing it i thought it was my age but i was ok 18 months ago then later on tonight the tingling sensation went right up my neck into my brain id been ignoring it but id been forgetting or getting things mixed up id never had the sensation in my neck before i wondered if its a side effect off the moveprep i had to have internal on my gut a few days ago so im not sure if its that very disconcerting when your doing something then suddenly get stopped midstream it not been to mhot here over the past two day quite cool outside just very warm in

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