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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)Comment receiving replies
I have been on hydroxy (500mg) since diagnosed and have really had no bad issues with it since I started. I think that this medication is used to control cell production while the aspirin is used to prevent clotting. I’m down to getting phlebotomy every 4 / 5 months compared to monthly when first started. Being very hydrated for your phlebotomy seems to help it go a lot quicker. My doctor is using my hemoglobin to manage both dosage and phlebotomy frequency and is using 16 as a trigger.
Replies to "I have been on hydroxy (500mg) since diagnosed and have really had no bad issues with..."
My Doctor uses the Hematocrit to determine when I need a phlebotomy. 45 is the number. Once over that, the next day phlebotomy. Hydroxyurea is to lower platelets and red cells. I’m still doing labs every two weeks until we get some sort of stability.
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wow that's great the hydrox is helping decrease your phlebotomy frequency- I'll discuss hydroxy with my doctor again. thanks so much for the positive feedback.
I was researching being on a clinical trial for a new oral medicine called Rusfertide, but I dont qualify. Didnt know Hydroxyurea is so popular