← Return to Polycythemia Vera: Just been diagnosed
DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
Replies to "Hey thanks so much for your reply , I wasn't sure if anyone reads these. My..."
What made you get that diagnosis. Was that blood test routine or did your doctor schedule a particular test based on what concern.
Hay, you sound like me 3 years ago when I was diagnosed with PV. I eat healthy, I'm slender, do regular exercise and take whole lot of supplements and vitamins but after two and a half years, with a biweekly phlebotomy, baby aspirin and POSITIVE THINKING, my red blood count was 2057, safe range is 120-400. I was heavily fatigued, had frequent stomach upsets and painful circulation problems, so I broke down and started taking hydroxyurea every night. I have regained my energy and now after 8 months my blood count is a bit over 900. As soon as it hits 500 I plan to take the hydro pill only 4 nights a week. I hate it, call it the poison pill, (PP) but it has helped with no side effects that I can tell. I suggest you relent and not let your platelets get out of control. Robin in NY State but I grew up in Southern California. So, Howdy!
Same for me since 2019. Baby aspirin and phlebotomy.
Just went to oncologist last week. Numbers are ok, platelets high.
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