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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 10 hours ago | Replies (782)
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@jess51

Hello from Victoria! I am 2 months plus into Camzyos and it continues to be very beneficial. I have had 2 ECGs since I started and I guess all looks fine as my dose of 5mgs has been maintained. I am happy to hear that you are also benefitting. Such a nice change!

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Replies to "Hello from Victoria! I am 2 months plus into Camzyos and it continues to be very..."
avcowie | @avcowie | Sep 16 1:32pm

Hi Jess51,
I’m from Victoria BC too!
I had OHS Feb 1 for my HCM but it was my Mitral valve causing most issues so they replaced it and left my heart wall alone. I tried Camzyos prior to that and it made me feel worse. Now I’m hoping it will work better for me. My cardiologist is setting up my first new delivery. So I hope I get it soon.
How are you doing these days? Have you increased your dose?
Thanks in advance ❤️

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