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Kidney Transplant: Does your creatinine bounce around?
Transplants | Last Active: May 27, 2023 | Replies (68)Comment receiving replies
Hi we returned home at 6pm from the ct scan.
doctor called us at 9pm to tell us that they have identified the problem and have a solution.
i was not on the call with my son. they explained to him that his surgeon will need to do a procedure. he is going to try and schedule it asap ... but as it is friday night... it will go to next week. he will keep us posted. my son was not too sure of the explanation... just that the nephrologist said it is a plumbing issue! my son things the doctor said " Nephrostomy Tube" to be placed to keep the tube open. Once we looked it up... we think that it will be a bag... and hoping it is temporary. we are not sure exactly... but we are for now grateful it's not rejection or infection, cmv. We will learn more I'm hoping on monday and i will keep you posted. thank you so much for sending such a heartwarming message and help us put things in perspective. thank you for your thoughts and well wishes and sharing your experience. it is very comforting I will keep you posted as we learn more .... hopefully early in the week... have a great saturday...maria
Replies to "Hi we returned home at 6pm from the ct scan. doctor called us at 9pm to..."
Hi, @mariags. I am happy that you have connected with @hello1234.
I hope that your son's procedure will provide the treatment that will result in his return to recovery from transplant surgery and allow him to proceed toward a new normal life. None of us transplant patients ever want another surgical procedure, but in truth it dose occur.
As a patient, I have been 'worked into' the schedule on several occasions. I will also be thinking of your son tomorrow.
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Hi @mariags 😊
I am so happy to hear that the doctor called the same day as the CT scan!
I am sure everyone in your family is super relieved to know it's not rejection and it's not infection.
The team will work on the "plumbing problem" to make sure there is good urine flow with no back-up into the kidney.
As you probably know, when a kidney transplant is done, everyone starts with a urethra tube that is normally removed by a urologist a few weeks later.
So, the team is very aware that good urine flow from the transplanted kidney is important (and inflammation can occur during this process).
I am sure that after they solve the immediate blockage problem with the nephrostomy tube, they will work on whatever is causing the blockage (or probably it's just inflammation that will naturally resolve after a couple of days or week with the tube).
Anyway, I am happy to hear that a minimally invasive procedure will protect the kidney.
Please keep me posted on how everything is going next week. I am very hopeful that your son is now comforted by knowing that everything is going to be okay.
It's scary to go through this stuff each time a challenge arises...(the unknown).
And then MEGA comforting when you hear there is a solution and everything is going to be okay.
....Feels like an emotional roller coaster sometimes!
These transplant doctors really know their stuff so your son can have confidence that it's not the first time they have seen these issues and solved these problems....All will be well.
BIG Hugs to you, your son and husband ❤ Talk to you next week, enjoy your weekend knowing everything is going to be okay.