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Nerve damage and pain that isn’t neuropathy but feels like it.
Neuropathy | Last Active: May 18, 2023 | Replies (33)Comment receiving replies
Hi Jalcorn,
Wow. So sorry you are enduring the pain and waiting for the diagnosis process to catch up with you. There are interesting parallels in our cases.
They recently found about 5 cysts and 2 nodules in my thyroid all under 1cm. I have to see endocrinologist to find out why and repeat ultrasound in a year. My labs have been ok within the thyroid situation.
I have nodules and cysts in thyroid, breast, bladder.
Me too. I stopped driving 11/21. When I could not feel the accelerator.
In my life I’ve had a positive ANA, low titer 1:40 speckled pattern. Ive also had history of suppressed tsh. The doc put me on 6 months of tapazole. He thought thyroid was hyper as result. He actually said mild intermitant Graves’ disease. I don’t include his evaluation in pt. History.
They dx’d me with autoimmune psoriatic arthritis in sacrum and it can move/attack any joint in body. I decided against the med doc wanted to give me due to its effects on immune system. If it starts to move I will reconsider.
I have a lot going on too. I can’t use Baclofen or any muscle relaxer because its causing urine retention and thats not good because it helped with the pain and I’m back to square one.
I’ve read when you have one autoimmune problem it’s possible to have more than one.
Did you have an EMG yet? FYI Don’t take anti inflammatories before a scan w/ contrast because it can alter results.
How was your CRP? i included in a picture the dermatomes of the body and thought it might help pinpoint what nerves affect what part of the body.
I hope your MRI gives you answers. I hope you get help for the pain. I spread the lidocaine all over bottoms of feet and just applying it with a q tip was agonizing. Walking is a real challenge. Waiting til may for mri is driving me crazy.
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Hello again and thank you for your reply and the picture included! It will be most helpful 🙂
Sometimes I feel that the diagnosis of neuropathy causes great stress and confusion to the physicians who are treating us. It’s such a vague area of medicine with no clear definitive answers.
I did have an EMG last year that showed that I have moderate to severe axonal distal polyneuropathy
My neurologist told me at that time that my symptoms wouldn’t worsen or go above my knees, and to put on a pair of high top boots and practice driving in a parking lot with my husband in the car.
Well I did just that, although my driving skills
are not the problem, it’s the loss of being able to feel the pedals!
I have seen two neurosurgeons who both said that surgery would not be advised after reviewing my mri.
My CRP and Sed rate are both normal.
The new joint and muscle pain is a mystery to me .
Came on quickly about a month ago. I still have it along with the constant numbness in my feet and ankles.
I’m sorry for all of your troubles , surgery is no picnic !
And to have this curse on top of everything else just doesn’t seem fair.
I choose not to take any prescription medicine for this as I just think it’s a slippery slope, and from what I’ve read from others experience , it’s not effective anyway.
For me, walking daily
even if only for a short distance , really helps in so many ways.
Being in pain all the time
is no fun, especially when no one can give you a reason for the pain.
I’m going to send you something that I received from a friend . Be well.