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I'm confused on all the references to 'one click, two click' stuff as I was put on Tymlos back in Oct. and told 'dial it to 80' period. I've also had some red spot pin prick soreness and def feel the needle going in too...as I think I do it too slow.
Also have had vertigo sporadically and initially had hair loss (about a brush a week) but that's tapered off...
Biggest prob right now is I've ended up w/some neuropathy as in 'tingling toes' and numbness which to me seems like a 'fall risk' as I'm an athlete, 63 as well and don't want to make my circumstances worse! I asked to be switched to Forteo right away as it was a 'gold standard' etc. but insurance wouldn't let me due to 'expense' so I'm stuck on Tymlos...and have adapted. It's a shame when insurance companies control healthcare...doc said I'd have to prove worse 'adverse reactions' for them to switch me over as they need 'substantiation'
Replies to "I'm confused on all the references to 'one click, two click' stuff as I was put..."
Good morning @elizabethaames and @lnl,
Thank you @ini for expressing your willingness to share your new medication journey with Connect members. That will be so very helpful to many.....some who read it today and others who read and benefit from your experiences much later. Have you ever realized that hundreds of folks may read your post and benefit......while only a handful write a response?
The member who knows the most about "clicks" as well as apparent side effects and even fractures is @windyshores. You may want to find her by using the search bar at the top of your screen. Pretty informative and giving lady.
By the way....I was also "stuck" on Tymlos at first because of insurance and costs. It ended up being a good decision. And as I recall, I already had SFN, small fiber neuropathy with lots of tingling toes and numbness in both my feet and my hands. So....I don't know if Tymlos was the culprit or SFN. I am off Tymlos now and, unfortunately, the neuropathy symptoms are still there.
May you have happiness and the causes of happiness.
Chris
You can turn the dial one click at a time. My doctor told me to start with half dose, which is 4 clicks (the point between the two arrows). I started mine two days ago. I definitely feel the needle and do not like it. I’ll continue to do it because I have osteoporosis in my right hip and osteopenia in my left hip and spine. I avoided it for a few years, but I saw a classmate with severe osteoporosis a while back and decided it was time. Hope you are doing well with yours.
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Hi, Elizabeth-- The guidance I got from my Dr--and from everyone on this site-- was to ramp up slowly. It seems to lessen the side effects for many people by letting your body get used to the drug. Many people on this site have also reported that they can tolerate, for example, a 6 but not a 7. A lot of us have been instructed to play around with the dosage to see what you can take on the theory that something is better than nothing. Who knows what the Dexa will show after all the fiddling. I'm sorry insurance is dictating your care. That's terrible, but it is the reality we live in. I hope you find a solution to your neuropathy.