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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
Brain Tumor | Last Active: Dec 20, 2022 | Replies (488)Comment receiving replies
Does anyone else have this so we can see if we can help each other with things that work to stop the dizziness
Replies to "Does anyone else have this so we can see if we can help each other with..."
Three years ago I flew to visit a granddaughter. Collapsed on arrival, and after 3 days in the hospital and many tests, I was told to get an MRI. Since I felt OK, I delayed the MRI until I had difficulty with balance, memory, etc. The MRI showed that I had hydrocephalus and an acoustic neuroma on the right side. Don't know whether one caused the other, but the neurosurgeon inserted a shunt into my brain. Had an MRI in Dec. and the doctor says the neuroma is not growing but the pressure on the auditory nerve is causing more loss of hearing in my right ear. He does not recommend surgery.
Recently have had problems with dizziness. Otherwise, the shunt seems to be working. I continue to drive, do yard work, travel, and enjoy the grandchildren. For some reason, the neurosurgeon does not recommend the cyberknife. Has anyone had a negative experience with this procedure?
Good question, Pedie. @mrser52 talks about the stereotactic radiosurgery (SRS) experience here. https://connect.mayoclinic.org/discussion/meningioma-brain-tumor-on-right-trigeminal-nerve/
You might also be interested in this discussion:
- Meningiomas. Gamma knife or Cyber Knife. Which is more effective? https://connect.mayoclinic.org/discussion/meningeomas-gamma-knife-or-cyber-knife-which-is-more-effective/
I am glad to hear that your current treatment (the shunt) is working well for you. That is wonderful that you are able to drive and enjoy other activities. However, if you are experiencing more dizziness, I can understand your concern.
Have you mentioned this to your doctor? Did your doctor say why he does not recommend surgery? When there is uncertainty about a course of action, a second opinion is always wise. Have you sought a second opinion yet?
Teresa
Thanks Colleenyoung
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Hi @breich0226, my apologies for the delayed welcome to Connect. You'll notice that I moved your message about Vestibular Schwannoma (also known as acoustic neuroma) to this existing discussion so you can meet others with a similar diagnosis, like @cynaburst @lindalb @saucy @rosesareredmylove2016 and @amkaloha
Breich, if you click VIEW & REPLY and read through the past messages of this discussion thread, you'll see that others have talked about dizziness as well. How does the dizziness affect you and how to compensate for it?