Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Thank you, I read they are relatively rare. I am having hearing loss but have the CT scan at Mayo thurs.

Hi @saucy
I encourage you to join this discussion about acoustic neuromas https://connect.mayoclinic.org/discussion/my-name-is-tracy-daley-i-live-in-omaha-nebraska-my-diagnosis/ where other Connect members are talking about their experiences.

You may also be interested in listening to this Mayo Clinic expert Q&A with Dr. Weisskopf https://connect.mayoclinic.org/webinar/mayoclinicneurochat-on-acoustic-neuromas-with-drs-bendok-weisskopf/

What questions might you have as you prepare for your appointment on Thursday?

Hi @user_chea8a92a
You might consider starting a new discussion in the Brain Tumor group with the title Ogliodendroglioma. It will help to bring everyone who has experience with this type of tumor to one place. Here's how to start a new discussion.

1. Go to the Brain Tumor group https://connect.mayoclinic.org/group/brain-tumor-support-group/
2. Click START A DISCUSSION.
3. Enter a title on the topic you want to discuss. For example "Ogliodendroglioma - Anyone else?"
4. Write your message.
5. Click CREATE DISCUSSION.

I am having a ct scan thurs as my Mayo Dr suspects I have a tumor in my ear canal. Had never heard of this but losing my hearing in one ear. Looking for info on this, Thanks

Yes! what was the out come and how did the surgery go?

What are the eye issues as I am having weird lights in the morning when my eyes are closed. See a neuro eye doctor after cat scan

I don't know what that is

After gradual hearing loss in my right ear over many years, after an MRI, I was diagnosed over a year ago with an acoustic neuroma in my right ear. Since the tumor is small, my ENT doctor suggested waiting and watching. I had another MRI in July of this year, and my doctor said that it was "very stable" and I would not have to have another MRI for two years. If it grows too large, I will have to have radiation before it causes more trouble, which has a 2% chance of causing cancer. The other choice is surgery (which they do not want to operate on older people like me - 60+), but deafness in the affected ear is expected - whatever is done. Acoustic neuromas are benign they say. I also have two small thyroid nodules that he is also watching and have to have another ultrasound in two years also. The larger nodule is benign. Good luck with your AN case. They do not know what causes them, and they are rare - just not rare enough since too many people have them.

Thanks! An lot of the stories were scary! I am 65 and a flight attendant, thought I was having veritgo and hearing loss from flying but tests show possibility of tumor. Still want to work for several more years before retiring, also I'm very active so hopefully all will be ok!

Hi Tracy, I had my tumor in 1992, My Dr. at Mayo found it when I complained of loss of hearing in my left ear. Had surgery and all went well! Lucky to have found it when it was small. I lost the hearing in my left ear and have a bit of a problem with balance. Have to be careful! When I eat my nose runs, small problem! I have been able to continue my work, consulting engineer, and I teach at a university. I'm now 82 and doing well!
Strange thing about my tumor is that my mother and her mother died of brain tumors at an early age. Back then there was no way to know what the tumor was. I would suggest getting to Mayo quickly to see how they recommend treatment! Good luck and let me know if I can help with any questions!
Gerry