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CLL leukemia: Just diagnosed, what can be done?

Blood Cancers & Disorders | Last Active: Jul 20 8:54am | Replies (200)
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@loribmt

Keeping in mind when you read the conversations that not all will apply to you. We all have our own experiences but I think you’ll find some very encouraging replies from people who have had CLL for many years without any issues.
It’s all overwhelming in the beginning but it helps to speak with people who have gone down a similar path. 😊

When is your next appointment? Would you mind if I check back in with you after that, if we don’t hear from you before then?

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Replies to "Keeping in mind when you read the conversations that not all will apply to you. We..."
buffalobill | @buffalobill | Apr 15, 2023

At this time, I do not wish to be contacted. My wife is seriously sick, and I am sick as well. It's been tough on me trying to manage two totally different diseases.

When it's time for me to talk, I will contact you first.

OK?

Thanks everyone for understanding my position.

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aleeab | @aleeab | Apr 19, 2023

I have phone appointment on the 27th. The second blood test (IGH SOMATIC HYPERMUTATION ANALYSIS, B-CELL CHRONIC LYMPHOCYTIC LEUKEM) showed "A mutated IGH V rearrangement was identified. The level of mutation identified was 5.1%.
The IGH V allele identified was 3-53*01.".
I am looking forward to the phone call to find out what that means to me and my health. I never thought I would regret not being a lot smarter so I could understand what all these words mean. Even looking them up in medical dictionaries don't really help understand them in relation to what is happening in my body. After all those years in the Army, meeting physical standards, eating and exercising to stay healthy, I feel betrayed by my DNA. So I wait another week to find out if I have a "watch and wait" disease, one that needs treatment "right damn now" or "make sure your will and affairs are in order, you'll be dead by the end of the year" . I can't even figure out what might have caused the problem to start. It is just so frustrating. Sorry to be so negative, but no one around me has anything upbeat and it is beginning to get to me. Aleeab

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