1. < Blood Cancers & Disorders

Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Posted by kellymorea @kellymorea, Feb 15, 2023

Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related symptoms. I am a type 2 diabetic but it’s been manageable until this month. I am very active, 63 years old and I stay tired, achy, and can’t lose weight no matter how hard I try and eat healthy. My stomach seems swollen. Does anyone have the same issues? Also I had Covid 19 in early 2021 and spent 6 days in the hospital. I’ve had 2 immunization shots. I stay sick with sinus infection and UTI’s.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

graildon | @graildon | Apr 13, 2023
In reply to @tatayababa "@jmds66 Are you having treatment or wait and watch? I am 62 yrs and I was..." + (show)
@tatayababa

@jmds66 Are you having treatment or wait and watch? I am 62 yrs and I was diagnosed Jan 2023 with CLL/SLL i have lymph nodes enlarged in both axillas; at this point no other symptoms thank goodness; no treatment right now for me. What is hashimotos?

Jump to this post

@jmds66 , I was diagnosed with CLL zydeco 2020 with swollen lymph nodes and doctor put me on wait and watch too. My wbc got up to 120 last year but dropped to 77 last month. I have been taking 4000 mg of EGCG for two years and that is the only thing that I can credit with the wbc drop.

REPLY
1 reply
jeremiedeb | @jeremiedeb | Apr 14, 2023
In reply to @jefferdw9 "I was diagnosed with CLL/SLL 14 months ago, since that time, (my lymphocytes were 4500 when..." + (show)
@jefferdw9

I was diagnosed with CLL/SLL 14 months ago, since that time, (my lymphocytes were 4500 when diagnosed) my lymphocytes have climbed to 11,000 last Nov and up to 22,000 this month, thus doubling in 5 months. Does any else have lymphocyte counts this high? Should I be alarmed by the 22,000? Or b the fast growth rate? Thanks for any help.

DJ

Jump to this post

My count is higher but developing more slowly

REPLY
1 reply
jefferdw9 | @jefferdw9 | Apr 14, 2023
In reply to @jeremiedeb "My count is higher but developing more slowly" + (show)
@jeremiedeb

My count is higher but developing more slowly

Jump to this post

Thanks. How high can it go?

REPLY
1 reply
jeremiedeb | @jeremiedeb | Apr 14, 2023
In reply to @jefferdw9 "Thanks. How high can it go?" + (show)
@jefferdw9

Thanks. How high can it go?

Jump to this post

I don’t know….mine is about 30,000

REPLY
1 reply
jeremiedeb | @jeremiedeb | Apr 14, 2023
In reply to @jeremiedeb "I don’t know….mine is about 30,000" + (show)
@jeremiedeb

I don’t know….mine is about 30,000

Jump to this post

What I have read is that the rate of change is more important

REPLY
tatayababa | @tatayababa | Apr 15, 2023
In reply to @graildon "@jmds66 , I was diagnosed with CLL zydeco 2020 with swollen lymph nodes and doctor put..." + (show)
@graildon

@jmds66 , I was diagnosed with CLL zydeco 2020 with swollen lymph nodes and doctor put me on wait and watch too. My wbc got up to 120 last year but dropped to 77 last month. I have been taking 4000 mg of EGCG for two years and that is the only thing that I can credit with the wbc drop.

Jump to this post

@jmds66 EGCG can you explain what this is? thx

REPLY
2 replies
jmds66 | @jmds66 | Apr 15, 2023
In reply to @tatayababa "@jmds66 EGCG can you explain what this is? thx" + (show)
@tatayababa

@jmds66 EGCG can you explain what this is? thx

Jump to this post

Hi I am not taking it but EGCG is a popular supplement derived from green tea in powder form

REPLY
emg112253 | @emg112253 | Apr 15, 2023

Does anyone have anemia as a result from indolent CLL?

REPLY
graildon | @graildon | Apr 15, 2023
In reply to @tatayababa "@jmds66 EGCG can you explain what this is? thx" + (show)
@tatayababa

@jmds66 EGCG can you explain what this is? thx

Jump to this post

EGCG is an extract from Green Tea. I buy it from Amazon

REPLY
View MoreView Less
Please sign in or register to post a reply.