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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)
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@csgreetings

Thanks Kit. Appreciate the kind words. I'm 68 and I think I may have had this a while. Looking back I've had syptoms for a while. My former doctor last fall did a 'complete' blood work up on me, but failed to do a HCT. I thankfully have switched physicians and am now with a University medical system, which I am so glad for. Will keep you posted - and thanks. Carol

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Replies to "Thanks Kit. Appreciate the kind words. I'm 68 and I think I may have had this..."
nypara66 | @nypara66 | Apr 14, 2023

I get annual labs with my physical so we know it's new for me. PLUS I began
menopause late when 54 almost 55 and many symptoms are exactly the same!
Headaches, tingling, stomach issues, flush face, loss of trend of thought
(AKA Brain Fog) So I honestly don't know which is causing what. I had the
complete ultrasound and all my organs and spleen are of normal size so they
say that means I am at the beginning of the disease. I do feel like I am
younger than most people on here, so I am very grateful I found out at the
very beginning. I am sure they will order that for you once you get final
diagnosis. I had the JAK2 Positive to confirm. No need to do bone biopsy if
all labs confirm. Good Luck!

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