Hey Carol! I was diagnosed in December 2022. So I’m fairly a newbie as well. I was completely floored with diagnosis! My spouse is the type just to brush it off and say oh you will be okay. I struggle with fatigue, joint pain, nose bleeds, bleeding gums, headaches and terrible discoloration and spots on feet/legs. But the good news is that the phlebotomies help me! I can feel a big difference. They were hoping to try every 3 months, after the first 3 months helped get numbers leveled. But I went primary dr last week and my hemacrit has came back up to 54. I’m 53 year old male. I’ve been having symptoms for several years. Terrible kidney stones. I’m just glad to find out what’s going on. Hang in there! It’s not a death sentence like you will read online! Finding good dr and taking care of yourself, you can live fairly normal. The Myth in TN