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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (400)

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@nypara66

Hi Carol! Yes, sometimes you feel light headed and get a slight blurred vision that comes out of no where but passes pretty quickly. My biggest issue currently is the tingling in my hands/ feet and arms/legs(not as often) I’m taking the baby aspirin and Hydroxyurea. After being diagnosed and put on the meds I had four weekly phlebotomies and everything was great so he took me off meds. Next phlebotomy was about six weeks later. Labs every two weeks, then showed platelets back just over 600 so back on the meds for a month now. I really don’t want to take them and read the tingling can be the PV and the meds can cause it also BUT my body will probably adjust to it in time. I hope so! I’m a 56 yr old female and have never had any health issues and didn’t take any daily meds until this. My husband cried and is so scared for me but I feel like I just need to stay on it and make sure I do my labs. It took a while to process… Also, many things I read on line weren’t true when I asked the oncologist, so try not to obsess with reading. KIT

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Replies to "Hi Carol! Yes, sometimes you feel light headed and get a slight blurred vision that comes..."

Thanks Kit. Appreciate the kind words. I'm 68 and I think I may have had this a while. Looking back I've had syptoms for a while. My former doctor last fall did a 'complete' blood work up on me, but failed to do a HCT. I thankfully have switched physicians and am now with a University medical system, which I am so glad for. Will keep you posted - and thanks. Carol

I’m reading so many have PV yet it’s considered rare blood cancer. Like you, I never have had health issues or been on medication. I am 69 white female. Was told I have PV three weeks ago. Having weekly phlebotomy and on Hydroxyurea 1000mg daily. My hematocrit number was higher than any my doctor has seen. 69.5 I feel the same healthy person I’ve always been. No symptoms here. Yet my life is now changing because I’m told to take medicine which I use gloves to take!! So many tests to undergo now. My EKG was fine so I’m scheduled next for a full body Cat Scan. Pray I don’t have anything wrong internally. I’ll pray for you. Hugs