Hi Carol! Yes, sometimes you feel light headed and get a slight blurred vision that comes out of no where but passes pretty quickly. My biggest issue currently is the tingling in my hands/ feet and arms/legs(not as often) I’m taking the baby aspirin and Hydroxyurea. After being diagnosed and put on the meds I had four weekly phlebotomies and everything was great so he took me off meds. Next phlebotomy was about six weeks later. Labs every two weeks, then showed platelets back just over 600 so back on the meds for a month now. I really don’t want to take them and read the tingling can be the PV and the meds can cause it also BUT my body will probably adjust to it in time. I hope so! I’m a 56 yr old female and have never had any health issues and didn’t take any daily meds until this. My husband cried and is so scared for me but I feel like I just need to stay on it and make sure I do my labs. It took a while to process… Also, many things I read on line weren’t true when I asked the oncologist, so try not to obsess with reading. KIT

Hey Carol! I was diagnosed in December 2022. So I’m fairly a newbie as well. I was completely floored with diagnosis! My spouse is the type just to brush it off and say oh you will be okay. I struggle with fatigue, joint pain, nose bleeds, bleeding gums, headaches and terrible discoloration and spots on feet/legs. But the good news is that the phlebotomies help me! I can feel a big difference. They were hoping to try every 3 months, after the first 3 months helped get numbers leveled. But I went primary dr last week and my hemacrit has came back up to 54. I’m 53 year old male. I’ve been having symptoms for several years. Terrible kidney stones. I’m just glad to find out what’s going on. Hang in there! It’s not a death sentence like you will read online! Finding good dr and taking care of yourself, you can live fairly normal. The Myth in TN