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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
Hello I’m new to PV also. Recently diagnosed in January this year. Are you getting phlebotomies as well? You had t mentioned that. I have t reached any sort of normalcy yet. Hoping the Hydroxyurea stables it out. I’m taking 5 days on 2 off. My platelets stemmed to drop nicely but suddenly jumped back up so I was told to give it time. I had just recovered from a nasty COVID experience so I’m hoping that had something to do with it. Glad you are well!
Replies to "Hello I’m new to PV also. Recently diagnosed in January this year. Are you getting phlebotomies..."
Very similar story here. About one and a half years since diagnosis. Started with daily hydrox. and phlebotomies every two weeks. Now down to phlebitomies every 3 or 4 months and hydrox 4x week. My doc uses that dosage based on hemoglobin and platelet levels. So far, no problems or side effects.
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Hello NYpar66 (New York?), I am just in the infancy of all this, and I too had covid in the past 6 weeks (took me 3 weeks to get back to feeling like myself again). I have one more test before my journey begins, though I have all the symptoms and we are moving forward with the 'diagnosis' of polycythemia. I'm scared, my husband isn't overly supportive and is responding as pretty clueless. I had a horrble dizzy event a couple of weeks ago that has never happened to me before. I appreciate your contacting me and look forward to hearing from you and learning your progress! Carol in New Mexico