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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

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@loribmt

Hi @anitarose, Welcome to Connect! Thank you for sharing your experience with PV. We often only hear the negative stories so it’s great that you’re doing pretty well on the Hydrea. It’s keeping your numbers even and that’s the goal.

Another positive is only needing bloodwork every 3 months. I felt liberated when my leash was lengthen to 3 month intervals. That meant my oncologist was seeing a predictable pattern and not anticipating anything out of the ordinary. So that’s a good indication that your meds are working.

Do you take Hydrea daily or every other day?

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Replies to "Hi @anitarose, Welcome to Connect! Thank you for sharing your experience with PV. We often only..."

Hi Lori,
I take one 500 mg Hydrea 6 days a week. Started with every day, but when numbers dropped, Dr told me to skip one day a week. That was about 6 months ago. Numbers still holding. 😊