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Feeling at my wits end with Chronic Pain and Fibromyalgia

Fibromyalgia | Last Active: Jul 16 6:18pm | Replies (318)

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@philipsnowdon

Hello there, I totally understand and empathize with your pain management challenges. I’ve been dealing with very serious and debilitating cases of CFS, FIBROMYALGIA and CHIARI MALFORMATION for 32 years. I fist started taking opiates at age 36 because they were the only medications strong enough to be of any assistance. Note, they didn’t get rid of all my pain but at least made it somewhat manageable or better at times, worse at others. I’ve done a lot of research about “opioids” and have found plenty of evidence to dispel most of the “unwarranted fear,” misinformation, disinformation and the misinformed which only serves to cloudy the facts and real issues at hand. “OPIOIDS” have a very important place in pain management for those patients who simply do not respond to other medications effectively enough. Most importantly, when your pain is more than moderate to severe and occurs on a daily or mostly continual basis……..you require “EFFECTIVE PAIN MANAGEMENT!”
The strongest dosages are not always the best, However, it needs to be strong enough and the best type of opioid for you to be the most effective.
Try several or more of them to find the dose that works best for you. Also realize that this may change over time. Lastly…. And also extremely important. There is very little evidence that patients with “LEGITIMATE and AUTHENTIC” long term chronic and or chronic accuse pain challenges ever develop
any kind of “Addiction” problems. The fact is, there’s barely enough efficacy for the pain meds to effectively deal with the singular or multiple pain factors at best. As a result, there is nothing left to get “High” on or receive some kind of “Buzz!” At best you will feel somewhat relaxed and sufficiently relived of the pain to naturally feel better! I’ve gone on and off of my pain meds on occasions for various reasons and have never experienced any kind of “Addiction” problems. I tell people who don’t understand the entire subject matter and the unfortunate, misplaced controversies around it. If you take several aspirin to get rid of a headache, do you take more aspirin when the headache pain is gone? Well of course not, there’s no reason too. Me and most opioid patients have found the same thing to be true for us. The opioids are only going to be as effective as they can be. Although all of your pain may not go away, you don’t take more opioids because they won’t get rid of any more pain. You get whatever amount of relief you get and taking more will not benefit you. I have rarely if ever experienced any kind of so called “High” on my pain meds. Thankfully, when they work most effectively, my pain or multiple pain issues are sufficiently dealt with and I can relax. It’s predominantly the people who do not really have any authentic chronic pain issues who stupidly take opioids to get high that end up having problems or becoming addicted. Unfortunately, these kinds of people and “Drug Abusers” give legitimate patients snd their caring doctors a bad name and reputation which is totally undeserved. Best wishes on your search for the right type, dosage and combination of opioids that will bring you the efficacy, pain relief and humanity you deserve.
GOD SPEED

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Replies to "Hello there, I totally understand and empathize with your pain management challenges. I’ve been dealing with..."

Great explanation of your experiences… however, i do believe there are many many folks who start out after an operation (for example) needing opioids for a short time for pain relief.. but their bodies seem to require them to keep taking the meds even after no longer needed for pain… and then they become accustomed to that dosage and must keep increasing it .. that’s an “ addictive personality” most possibly though..
I too take a small dosage of Vicodin when pain is too strong for me from fibromyalgia / Chronic fatigue syndrome ..
i could easily slide down that “ slippery slope” of adding more Vicodin as i do notice a “ high” comes with it at times ! BUT I’m aware of this and choose not to go down that slope ..
But not everyone may be as diligent or as “ respectful “ of its bad potential as I am…
Everyone is different I’ve learned
Chronic pain is depressing and changes our entire life n lifestyle -
My dr now has me in large amounts of vit C with an infusion .. and a small amount of Adderall for energy n focus
It’s truly trial n error for each person
Good luck on this rough journey
You are NOT alone