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Small Fiber Neuropathy discouraged

Posted by graysea @graysea, Jul 14, 2022

I had minimal health issues until the fall of 2019. My general practioner dc'd a medication cold turkey. This caused small fiber neuropathy. It took two years to diagnose and treat. I spent two years in my husbands arms screaming and crying. In February of 2021 my neurologist placed me on 40 mg of prednisone. I reacted poorly, without pain relief. He was ruling out poly rheumatatica. In June the dictor removed Gabapentin from my allergy list . The nurse stated I would not have the same response. I did. It was hell. By this time the neurologist was uncomfortable taporing me off of prednisone. I have been taporing for slmost a year. The tapor is hell. Im currently on 6 mg. I am currently being treated for pain. The prednisone tapor is suppose to last until Dec. I lost almost everything in the last 3 years. I keep on trying. I wont stop trying to feel better.

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graysea | @graysea | Apr 12, 2023
In reply to @graysea "I'm not sure if the last message got through. The psychiatrist/counselor is great, But he redirected..." + (show)
@graysea

I'm not sure if the last message got through. The psychiatrist/counselor is great, But he redirected me to see someone that could reduce the pain.

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I was seen in the ER by a compassionate team. Because of my negative reaction to medications it is tough on them. They tried their hardest. An appointment has made with my internist to see if I can get on top of the pain enough to eat and rest. Wish me luck

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2 replies
fala | @fala | Apr 12, 2023

Hi
I was raised to be a VERY strict Pentecostal church member.

I have Severe Peripheral Neuropathy.

My Doctor recommended Cannabis.
I tried it!
It is the only thing that has EVER worked for me!!
It took me a while to figure out the correct dose, but my pain went from unbearable to tolerable.
Best wishes!!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 12, 2023
In reply to @graysea "I was seen in the ER by a compassionate team. Because of my negative reaction to..." + (show)
@graysea

I was seen in the ER by a compassionate team. Because of my negative reaction to medications it is tough on them. They tried their hardest. An appointment has made with my internist to see if I can get on top of the pain enough to eat and rest. Wish me luck

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so good to hear that you were seen by a compassionate team. Your husband must be relieved too. I'm sending luck your way, @graysea.

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julbpat | @julbpat | Apr 13, 2023
In reply to @graysea "I was seen in the ER by a compassionate team. Because of my negative reaction to..." + (show)
@graysea

I was seen in the ER by a compassionate team. Because of my negative reaction to medications it is tough on them. They tried their hardest. An appointment has made with my internist to see if I can get on top of the pain enough to eat and rest. Wish me luck

Jump to this post

You sound better. Sometimes just being shown care and compassion helps so much.

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