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PMR with normal blood markers

Polymyalgia Rheumatica (PMR) | Last Active: Oct 19, 2023 | Replies (84)

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@connelly

I have had PMR now for 16 months. Healthy, highly active 83YO with no other illnesses or disabilities. Classic bilateral pain symptoms with elevated inflammation markers that quickly declined after starting 15mg Prednisolone and have remained normal ever since. Taper completed April 2023. However - over the entire period with Prednisolone and after ending my taper - bilateral pain (shoulders, arms, wrists, hands, hips) remained much the same. Worst in the early hours of morning. Alleviated by running and gym work. No signs of arthritis - my affliction seems to be entirely centred in the tendons with pain as the central manifestation. From my treating doctor’s point of view I am an atypical case for whom there is nothing much to be done. He has prescribed low dose Naltrexone (LDN) solely because I requested it as an experiment.

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Replies to "I have had PMR now for 16 months. Healthy, highly active 83YO with no other illnesses..."

Thank you so much @connelly that is encouraging to hear - so similar to my pmr journey. Hope the LDN works!