Post Covid internal vibrations & hair loss
Hi, I’m a 61 yo woman who spent 16 days in ICU with bilateral. Pneumonia, acute kidney failure, acute respiratory failure & acute hypokalemia in Nov-Dec of 2021. To back up, I have had “Battles” with severe sepsis & septic shock off & on for the past 22 months & the etiology is still unknown! So after my last hospitalization in May, I noticed my hair was no longer falling out by the buckets after Covid; it was literally GONE within 5 days! I have been to every medical discipline known to man. They don’t know why I continue to get septic; but agree my hair loss is 100% due to long Covid. I guess I just assumed it was from the stress to my body from all 13 sepsis hospitalizations. About 8-10 weeks post Covid I had mild internal vibrations! Just brushed it off. Then they became more frequent, harder & lasting up to 2-3 hours. At first, I accused my friend of having a couch that vibrates. She looked at me like I’d lost my marbles & said “there is nothing vibrating”. Of course I insisted she come sit where I was & feel for herself… nothing. I said “well feel my arm”… she said “I don’t feel anything”. Then I stood up & said “Oh Sh…, the floor is vibrating really hard!” And again “NOPE”. I’ve been to a couple Dr.’s who have no idea why this is happening. I have an appointment with a Neurologist in Dec. & hopeful for some answers! I’m so darn grateful I came across this website!! I’m shocked AND relieved that so many others suffer these vibrations. Mine happen more frequently when I lay down to sleep; but happen in addition to that at least 2-3 times during the day. When they are severe, I can’t walk around or drive. Mine are throughout my entire body. My feet & head are the worst. I feel my entire body jumping ; it amazes me that no one can see or feel them. My brain & teeth even feel like they are “trembling” ! Since I’ve gotten no answers, I’ve learned to just embrace it until someone comes up with a definitive DX &/or TX!! Now I just go lay in my bed & turn on my bed vibrator as high as it will go for as long as it takes! When my bed is vibrating, it makes my internal vibrations feel less apparent! I don’t venture out too far anymore because I’m a bit paranoid it will happen in public where there may not be a chair! I definitely lost my career probably indefinitely due to my health, which before sepsis was great! I have memory issues also; so working in a hospital caring for patients isn’t in the cards! In this journey of mine; I’ve had to rely on my new “motto” … “PAIN shapes a woman into a WARRIOR!” And for the gal that I ran across also with hair loss issues; I share this with you: “You don’t need hair to wear your crown honey!” Peace & Love 💕 God Bless y’all, “May you find comfort from your afflictions through Jesus Christ our Lord & Savior”!! Stay faithful 🙏🏼🫶🏼♥️🙌🏼
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Yes internal shaking and overall joint pain and weakness! Anyone else?
(I have long term OA and RA! ) rsvp?
@1tremorgirl, I moved your post about internal shaking to this related dicussion:
- Post Covid internal vibrations & hair loss https://connect.mayoclinic.org/discussion/post-covid-internal-vibrations-hair-loss/
@felicia2, you may also be interested in this discussion:
- Joint inflammation and muscle pain after COVID https://connect.mayoclinic.org/discussion/joint-inflammation-and-adults-possibly-from-covid/
Test your b-12 and folate levels. Low levels can cause neuropathy and neural symptoms. 🤞
The neurologist did extensive blood work and those levels were included. Everything normal.
Muscle spasms have finally decreased to just a few every few days. The internal vibrations/buzzing is only in my legs in the evening. A mystery…
It will be a year May 5.