Extreme pain in my feet. Neuropathy

@lacy2 -- All that burning sounds pretty miserable. I don't really get it in my feet and hands anymore like I did for decades, thankfully. It's rare the issues cease. When you talk about that burning, it reminds me of when I was told to take niacin to help something and that caused that horrible flush reaction for me where I was literally under cold water trying to get relief. It started about 30 minutes after I took it and would last for about 45 min. My skin would turn bright red and hot to the touch like a bad sunburn. Just checking to be sure you're not taking niacin for anything. I hope the neurologist will provide you with some answers and relief.

So sorry for you. I am 72 and dealing with this for maybe 10 years. Neuropathy was caused by diabetes but my numbers were never real bad. As per doctors orders, I'm pretty strict with my diet, not perfect but strict. I am not even heavy. It has basically ruined my life as when it flares up I do not want to be far from home base. I take Gabapentin 2400 per day. Maybe works a little, maybe. "like getting your foot run over by a truck, them having boiling water poured on it" says it all. I've tried stem cell, prp, light therapy, electro-acupuncture, many different pills and lotions. NADA!!!! I hope you find something and pass it on to all of us. Good luck, my friend!!!

I have constant serveteran pain all day and night from my toes through my feet up my calves through my thighs and buttocks.

Thats simply amazing your issue ceased after decades

Oh yes!!!!! The burning, numbness, stabbing sharp pain…….feels like my feet are in a fire pit of hot coals. I just tried Lyrica. I hope it works for you. After 4 long years, I have finally been diagnosed with Axonal Sensorimotor Polyneuropathy and Small Fiber Neuropathy. The pain is extremely severe in my feet, ankles and some of my calf muscles. Also, in my hands and wrists. I feel alone; others can’t see what is wrong!!!!

How did it start, in your toes? how long was the progression moving into your whole foot, calves etc, can we get more details? meds you take etc?

Hi @annregister -- Sorry to hear about your pain issues. Did the Lyrica help at all?

I have a lot of disorders people can't see including neuropathy. I completely empathize with your frustration of appearing normal to others while battling so many issues. If you have a cast on, people can understand that. Invisible disorders are another story. A perfect example is my neuropathy (HNPP) has made eating a challenge. I have trouble controlling many foods in my mouth and aspirate as a result when the food slips down my throat before intended. That became constant 8 years ago. It's both a medical and social problem. Then 6 years ago, I lost my ability to taste and smell after taking very strong antibiotics for diverticulitis. So I can just tell someone about these two problems and their next sentence is, "Oh maybe, you can eat x, this is how I make it and then they start telling me the recipe and how great it tastes." Did I not just say I can't taste anything? Seeing is believing as they say.

Yes, invisible disorders can feel lonely. My son who inherited my HNPP once said to me, "I'm not glad you have HNPP, but because you have it, I'm so glad there is someone else who understands what it's like. No one ever believes all the crazy things that happen due to this. He had to have nerve transposition surgery in both arms. He has weird stuff from it too.

I hope you can find something to take the pain away.

How did it start, in your toes? how long was the progression moving into your whole foot, calves etc, can we get more details? meds you take etc?