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DiscussionHigh Factor VIII (8) Blood Clotting Disorder and its Impacts on life
Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)Comment receiving replies
Replies to "Do your number ever improve?"
Sorry. I thought I responded yesterday. My numbers stay high. They never come down to normal even with Xarelto or Eliquis.
I am off Eliquis now due to my kidneys. So I am on no blood thinners. Me and my hematologist talked and I will only take Eliquis if I fly more than 2 hours or ride in a car more than 4 hours. But this is just me due to my kidneys. Everyone is different.
When your body is in distress like getting Covid, an infection, surgery etc. your Factor VIII will get very high. You are extremely high risk for getting a clot.
Now with that being said…I had nothing happening to me and I was just watching tv with my legs up in a recliner and I got one in the small vessel of my ankle. Hurt soooo bad and went to ER. Whole leg turned red. Took blood thinners and it resolved itself. So it can happen at any time. I carry my Eliquis with me everywhere I go just in case.
I get on with my everyday life but I am more cautious now.
I’m not a doctor and I’m always trying to learn more about this High Factor VIII. I know that we have these different factors that make up or proteins in our blood and our Factor VIII has a mutation which is genetically handed down in our dna from one parent which throws off some of the sequencing in the factors in our blood. Which makes our blood clot.
I am now looking into info on Protein C and Protein S in the blood. From what I have read these proteins have something to do with High Factor VIII. It keeps coming up on things I read on High Factor VIII. So I’m going to have my hematologist do some blood work on me regarding this to see if those proteins are high or not. I will keep searching on this High Factor VIII.