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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
Hello everyone. I am Tammy 60yrs old. My osteoporosis journey began on the assembly line 10yrs ago. But due to the doctors finding severe osteoporosis. The repetitive motion was fracturing me but of course the company ruled it was not work related. I have had 9 vertebrae fractures and 3 ribs. I have done 2yrs of Forteo. No improvement. 5yrs of Reclast. No improvement. I have been on Prolia for a year. My pain has increased 1000%. Now my doctor wants me to try Evinity. She is seeing if my insurance will cover it?. Other than my bones being brittle. I am healthy. But worried about the heart issues with Evinity.
Replies to "Hello everyone. I am Tammy 60yrs old. My osteoporosis journey began on the assembly line 10yrs..."
So sorry to hear about your fractures. I would encourage you to follow the " My Experience on Evenity for treating Osteoporosis" blog with the Mayo clinic. There is so much support and things to consider if you are thinking of taking Evenity. I also have tried multiple medications in the past with no results and took a 6 year break from all medications. I am 61 years old, diagnosed at age 50. I have taken 2 doses of Evenity. If you have heart issues I would recommend you see a Cardiologist and have them discuss the pros/cons of taking this medication. There are quite a lot of side effects unfortunately with this medicine. I have been lucky and only have had minor ones, others of this site have not been so lucky. Good luck to you and your journey.
Tammy, have the docs explored what are factors that brought about your OP and are interfering with your improvements? When there are secondary factors, it opens the door for intervening in those forces that are tearing down your bones. The primary cause of female OP is menopause--loss of estrogen. I am sorry you are beset by all these fractures. The down time from exercise sets up a cascade of weakening bones that would otherwise benefit from forces you exert upon them. The drugs can't do the work alone. I hope you can get the docs to explore what is causing this.
Hi @momof3gmaof15, I moved your questions about Evenity to this existing discussion:
- Anyone taken Evenity (romosozumab) for Osteoporosis? https://connect.mayoclinic.org/discussion/evenity-osteoporosis/
I did this so you can easily connect with others talking about Evenity. There are many discussions about Evenity. If you type Evenity into the Search field at the top of the website, you'll find a wide variety of topics.
For example, this is the discussion that @pedsnurse61 recommended:
- My Experience on Evenity for Treating Osteoporosis https://connect.mayoclinic.org/discussion/evenity/
Like @dk68, I wonder if there are other underlying causes that are preventing you from having success with medications. You mention doctors - plural. Have you had a second opinion with an endocrinologist?
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The reviews that I've read about Evenity would suggest that the success rate would be be no better than what you've experienced with other treatments