← Return to Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

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@carlabranton

Can anyone recommend a specialist how treats Epstein Barr Virus near Pittsburgh, Pa? My 23 year old son was just diagnosed with EBV and has had a sore throat now for over 4 months. Tx!

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Replies to "Can anyone recommend a specialist how treats Epstein Barr Virus near Pittsburgh, Pa? My 23 year..."

There is no treatment in the West for this disease. It is more prominent in Asia and they do HSCT stem cell transplants to kids who get EBV/Mono. Your son can get a transplant in Panama. My doctor referred me to Panama for help. Sorry to say it but your son has chronic EBV and will struggle with it for life. Every time his immune system is down he will get either mono, bronchitis, even pneumonia. Let's just pray it doesn't pretend to go dormant and turns into sCAEBV. That is what some of us have and what happens is you get over the mono finally and everything seems fine. It may be 10 years later even 20, but eventually, after it has hidden in organs etc, it decides to rage war with the immune system. It comes out of hiding and there is severe pain systemically, severe ice cold night sweats, anemia, bone and joint severe pain, heart palpitations and cardiac issues, lesions in lungs, spleen etc. Once CAEBV is diagnosed there is only a 13% chance of living another 50 months. only 20% of all stem cell transplants are successful and most die from complications from HSCT. Prayers for you and your son my friend.