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Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Blood Cancers & Disorders | Last Active: Aug 12 7:56pm | Replies (44)
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@cheft

I’m in Twin Cities MN. Rochester MN Mayo is 2 hours away. I did look up trials that may be available however they seem focused on high risk smoldering myeloma. I have been told I’m currently low risk but not sure how they decide that. Oncologist said I have 25% chance in next two years of going to active myeloma. My effected marrow went from 5-7% last year to 10% last week. I am going to talk to the Mayo docs for second opinion. As far as how am I? Ok I guess, just worried about if it gets worse in next year or two how successful is treatment in keeping me around longer? And how long can I expect to live with active?

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Ginger, Volunteer Mentor | @gingerw | Apr 10, 2023

@cheft My apologies for assuming you were in the Virginia area given the info you said about the cancer institute you were seen at! Yes, definitely head to Mayo Clinic for a second opinion. The team at Rochester is stellar. My oncologist was part of that team until he relocated out here about 6 years ago. It is worth the peace of mind to know you are doing the best you can for your situation, and feel secure in the answers you are given. I know from experience with different health issues, that as a patient, you deal with everything much more confidently when you have taken the effort and time to look in to all avenues of education, and treatment, making your decisions wisely based on what you find out.

Please let me know what you decide!
Ginger

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