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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (400)

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@springer44

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was negative (for leukemia) but my iron and ferritin are extremely low. No obvious symptoms so far. Both my oncologist and my vascular surgeon nephew tell some people have treated this condition for years with Hydroxyurea with no or only minor side effects. So far no negative reaction to the medication for me.

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Replies to "Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was..."

That’s great news for you. We’re all different, and so are of course each of our side-effects. I wish you continued wellness.
I have JAK2 PV and had to change hydrea for Jakafi, but generally doing ok.