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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)
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@yellsome

I was just diagnosed with high factor 8 last week, after having DVF and a pulmonary embolism last summer,,,,I did have a mild case of Corvid in Jan..I have been all over the internet getting info on it,,,,I am diabetic on insulin and 76 yr old...How often should we be tested? I see the specialist again in Oct....

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Replies to "I was just diagnosed with high factor 8 last week, after having DVF and a pulmonary..."
juliannemarieadam | @juliannemarieadam | Apr 11, 2023

I get tested 3-4 times a year for High Factor VIII by my hematologist.

I’ve been doing this for 3 years now.

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carriebythesea | @carriebythesea | May 15, 2023

I think it depends on your doctor. I seem to remember that in the early years, I was tested once a year (maybe more often the first year) and then we decided to skip it for 5 years thinking it wouldn't change much. Other folks on the board may test more often.

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