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Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Transplants | Last Active: Jun 11 10:36pm | Replies (179)
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@mott1090

That’s amazing! Congrats on your transplant. I think they give anti virals for JC and reduced immunosuppressants. I had anti body mediated rejection to my donors DNA. I’ve heard of people getting 30 years out of their kidney’s! I hope we both get many decades.
They reduced cellcept and they may eliminate is based on the results of Lumbar.

I’m on Prograf 1MG AM and 2mg night
Cellcept 250 AM- 250 PM

JC is a blood test they have to send out. It shows antibodies for JC virus. I’ve had a lot of issues since I had noro/covid with muscles firing non stop and spasming. It has been super weird. I had a few spots on my MRI that were unspecified.

My original kidneys failed from a genetic mutation. How about you?

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Replies to "That’s amazing! Congrats on your transplant. I think they give anti virals for JC and reduced..."
hello1234 | @hello1234 | Apr 9, 2023

Hi @mott1090 😊
My transplant doctor reduced my Cellcept to 250mg bid also when I developed BK virus so it sounds like the treatment is similar. (But there was no antiviral for the BK, just reduction of the immune suppression meds.)
I recently went "negative" in the blood and significantly less BK viral load in the urine, so the reduction solved the problem.
Now I think I understand what you meant by a lumbar test. I thought you may be referring to osteoporosis, but it sounds like a type of spinal fluid test for JC virus. Is that what the lumbar test is? When will you receive the results?

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