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Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Transplants | Last Active: Jun 11 10:36pm | Replies (179)
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@hello1234

Hi @mott1090 😊
Congrats on your second kidney transplant in 2021! I received my kidney transplant in 2020 (duringthe height of covid).
Eight months after my transplant, I developed CMV and then a few months later, I developed BK virus. I never heard of JC before, but it sounds like it's probably treated like my BK virus.
Did you have a reduction in your immune suppression meds to fight the JC? Also, how did you know that you had JC? (When I had CMV and BK, they were both identified with a blood test).
Did you need a second kidney transplant due to chronic or acute rejection...or something else? It sounds like you had 10 good years with your first transplant and here's to another good run with your new transplant!!

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Replies to "Hi @mott1090 😊 Congrats on your second kidney transplant in 2021! I received my kidney transplant..."
mott1090 | @mott1090 | Apr 9, 2023

That’s amazing! Congrats on your transplant. I think they give anti virals for JC and reduced immunosuppressants. I had anti body mediated rejection to my donors DNA. I’ve heard of people getting 30 years out of their kidney’s! I hope we both get many decades.
They reduced cellcept and they may eliminate is based on the results of Lumbar.

I’m on Prograf 1MG AM and 2mg night
Cellcept 250 AM- 250 PM

JC is a blood test they have to send out. It shows antibodies for JC virus. I’ve had a lot of issues since I had noro/covid with muscles firing non stop and spasming. It has been super weird. I had a few spots on my MRI that were unspecified.

My original kidneys failed from a genetic mutation. How about you?

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