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Narcolepsy Type 1 (Narcolepsy with Cataplexy)
Hi there. After years of unexplained symptoms, my daughter was finally diagnosed with narcolepsy type 1, aka narcolepsy with cataplexy. I too suffer from hypersomnia, but the cyclical nature and neurological symptoms seems much more in line with Kleine-levin syndrome. Does anyone know if there’s a connection between the two? Also, kleine-levin is so rare I feel like it would be hard to get a doctor the take me seriously. It was hard enough getting my daughter diagnosed with narcolepsy—it took years!
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As I mentioned I don't have cataplexy, but the other symptoms are bad enough. I'm alrey taking hydrocodone. What did you have to do for this @sleepstate?
What did I have to do for what? I'm not sure what you mean. Yes the fatigue, sleep paralysis, no energy and depression it all triggers is worse than my cataplexy is. I've been on a low dose of my meds 34 and 28 years and slowly become tolerant to it. It doesn't work nearly enough to live life every day anymore. It does if I increase it but my Dr is too worried he'll have the feds on him if he does. I don't blame him. The way things are he might. It's terrible, so many people are having their meds reduced or cut off and really suffering because of over regulating.
Sorry, I must hav misunderstood something. I have a strange case where my symptoms didn't hit until I was 61. Maybe I can hang in there before my meds stop working.