Diagnosed with Meningioma

Hello @sambarry8585 and welcome to Mayo Clinic Connect. I am sorry that you are faced with this. I am sure with this being your second time hearing concerning news, you are in need of support, so glad to have you here where we get and give support to one another.

You will notice that I have moved your post into an existing discussion on meningiomas, which you can find here:
- Diagnosed with Meningioma: https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma/

Members like @rsfcowgirl and @jmb73 have recently been in this discussion and may be able to come back and share more with you.

Do you have a date for your consult with the neurosurgeon?

Hi I have been diagnosed with vestubelar neuritis and Neuro calls it meningioma behind my left ear anyone else who has this?

Hello @khoosen and welcome to Mayo Clinic Connect. There are several members with varying meningioma diagnosis, so you will notice that I have moved your post into an existing discussion on meningioma, which you can find here:
- Diagnosed with Meningioma: https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma/

Members like @sambarry8585 @rsfcowgirl and @jmb73 may be able to come in and share more with you on their meningioma journey.

When were you diagnosed?

I was diagnosed with a meningioma 28 years ago. Now at 51, dealing with fatigue, and ringing in ears yet I got these results from my MRI yesterday. Can anyone advise. My Dr hasn't called me back to explain. Idk why they have hearing loss because I passed at 100%.

HISTORY: Bilateral tinnitus and sensorineural hearing loss, asymmetric. History of meningioma.

TECHNIQUE: Imaging of the brain included sagittal and axial T1, axial FLAIR and T2, axial diffusion and axial susceptibility weighted, contrast enhanced sagittal, axial and coronal T1. Imaging of the IACs includes thin axial T1 and T2-weighted fiesta, contrast enhanced axial and coronal T1. 14 mL MultiHance contrast were administered.

COMPARISON:None

FINDINGS: The ventricular system is midline and normal size. There are scattered small periventricular and subcortical white matter lesions throughout both cerebral hemispheres. These are most consistent with changes of small vessel vasculopathy or ischemic small vessel disease and clinical correlation is needed. There is no acute ischemia on diffusion imaging. There is no associated enhancement. There are no other parenchymal abnormalities. There is no evidence of acute edema, parenchymal mass, or mass effect.

There is a small, dural based, mass along the right parietal lobe measuring 1.4 cm in oblique craniocaudal diameter, by 0.9 cm in thickness 1.3 cm in oblique transverse diameter. There is evidence of associated calcification and a broad base on the dura. Findings are consistent with the patient's given history of meningioma. There is minimal mass effect on the adjacent brain. There is no associated edema. There are no other extra-axial masses and there is no other abnormal enhancement on postcontrast images. Normal enhancement of dural venous sinuses is present.

Incidentally noted is a 1.2 cm septated pineal cyst, without solid or nodular components. There is slight mass effect on the tectum without compression of the aqueduct.

Imaging of the internal auditory canals demonstrates a normal appearance of the 7th and 8th nerves on both sides. There is no mass and there is no enhancing abnormality. Cerebellopontine angle cisterns and internal auditory canals are normal in appearance. There is no destructive lesion of the skull base. There is no fluid in the mastoid air cells. Minimal ectopia of the right inferior cerebellar tonsils noted, without crowding or compression.

IMPRESSION:

1. No acute intracranial abnormality. Scattered white matter lesions, likely representing mild small vessel vasculopathy or ischemic small vessel disease.

2. Small dural based mass along the right parietal convexity consistent with meningioma. No significant mass effect or edema and no other masses.

3. Unremarkable appearance of the internal auditory canals.

4. Pineal cyst with mild mass effect on the tectum but no significant compression or ventricular obstruction.

I would also like to know about this question. Mine is either a meningioma or trigeminal schwannoma and we are waiting and watching. I worry a lot about this and what the future holds

In 2016, I was hospitalized for excruciating pain in my head. After undergoing an MRI scan, I received the devastating news that I had a brain tumor. Unfortunately, doctors were unable to determine if it was cancerous and the location of the tumor made a biopsy too risky. Despite the daunting prognosis, I chose not to undergo the biopsy due to the high risk of paralysis or blindness.

Although the doctors were initially unsure if I would make it out of the hospital, I eventually did. However, I've continued to experience deteriorating health since then, and today I'm essentially just surviving. Despite the challenges, I'm grateful to have discovered a community of individuals who are facing similar medical struggles.

Currently, I'm losing mobility on my left side, which is particularly tough since I work as a bartender and require the use of both hands. I feel lost and unsure of where to go from here. Nonetheless, I'm thankful for each day that God gives me and will continue to push forward.

I am so sorry you are going through this.
I am assuming you went to the Mayo Clinic since you are on this blog. I also went there after a brain tumor diagnosed. They were wonderful. Do you follow up with brain scans to see the status of your tumor?
I had Gamma knife and surgery in 2019. I also have increased
mobility issues on my left side which effects my hand and walking. I have started seeing a motion specialist (who knew there was such a thing) in my city who has helped me with medication and physical and occupational therapy . Please know that you are in my prayers.
God will take of you.

No i haven't been to the mayo hospital i thought this group was for anyone going through the same thing im sorry and thanks for the prays likewise

I am so sorry that you are having all these issues. I had Gamma surgery in 2019 and so far, things are good. Did you ask the doctors if you could have Gamma surgery? The surgery uses lasers and it stopped my meningioma from growing. I have an MRI every other year to monitor it.
I will pray for you .

Prayers for you🙏 My 19 year old has the same diagnosis about 2019 , and so far no new growth. He is being followed at Mayo, RochesterHas there ever been A cure for this?