Osteoporosis treatment

That was the problem, I had no GI symptoms at all. It's called silent celiacs and apparently quite common. I was shocked to get this diagnosis, as I ate pasta and bread practically every day. My symptoms were unexplained weight loss, severe osteoporosis, multiple fractures and then neuropathy in both feet. I finally found a doctor who was able to connect all the dots, thank God!

So sorry to hear this for you. Thankfully you did find a doctor who took the time to diagnose you. Did you have lab tests that showed you had Celiac and than an Endoscopy to confirm this? I have gone to multiple MD's to find the source of my Osteoporosis and have been on several medications with no improvement. It is very frustrating. I can imagine being in shock after finding this out. I think many people in our community of Osteoporosis might have this condition also and not know it. Thank you for sharing your story.

I had a serum celiac panel, which measures the antibodies present with celiac disease. Over 30 is strongly positive, I was at 141. I didn't follow up with endoscopy, mainly because it would have taken 2-3 months to have tests completed and I had to keep eating gluten until then. Blood test is 91-95% accurate and this diagnosis explained all the symptoms I'd been having for years. So, I became gluten free the minute I got that lab report, and continue with my bone strengthening program...just added Prolia to the mix. So far, no side effects at all!

Just as an afterthought, I totally understand the frustration you are feeling with the lack of answers from all the MD's. If you haven't done so already, I would highly recommend finding a good endocrinologist. They're the ones that really get to the root of the problem. Good luck to you!

Thank you, and good luck to you. I unfortunately have been to many Rheumatologists for my Osteoporosis and haven't had the best luck in finding a good one in my area. As far as Endocrinologists around where I live they don't seem to want to see patients with this. I am currently taking Evenity and if I have no improvement after the treatment I will need to do extensive research and possibly travel to find a MD who can help me.

Thought I'd reply on the celiac front. I was diagnosed with osteoporosis (-3.6 in spine; osteopenia in hips) and was frankly shocked. I couldn't get any answers from any doctor as to why this had happened. No real history of osteo in family. They put me on fosamax and sent me on my way. That was about 20 years ago. Well, not being one to let things go and whined and complained for about a year and one doc finally sent me to a rheumatologist. He ran a bunch of tests and I figured it had to be a non cancerous tumor on the renal gland because I sure didn't have any of the symptoms of the other things he tested for. I was pretty shocked when he came back with celiac. I, too, am a silent celiac I have no gastrointestinal symptoms at all. But I should say celiac has a variety of symptoms I know one man who only had anemia. I've been gluten free since then. The villi in the intestine are 'flattened' and can't absorb nutrients i.e. calcium. Since a whole lot of your body requires calcium it takes it from your bones. Celiac was thought at one time to be rare like 1:5000 but I think now it's 1:141. It may not be something a doc thinks of. But it is a simple blood test.

I really hope the Evenity works for you!!

No, the endoscopy was because I was having trouble with food getting “stuck” halfway through.
She found a small hernia and a Schatzki ring.
But she did mention that she saw the stomach tissue a little inflamed. Pathology came back negative, but I will definitely ask to be tested for Celiac.

Can you tell me more about this program that you used and how did you learn about it? How did you know it was reputable? I was looking at Bone Coach but was afraid to take the leap just not knowing how reputable they are.

Hi there!
I learned about the Better Bones Program through internet research. I was motivated to find alternative solutions to poor bone health because the side effects of bone medications scared me. I read enough of the Better Bones website information to convince me to spend the $350 for the online course. Its content is well-researched with documented results in bone density improvement from many women. Dr. Brown is a medical anthropologist who has been studying bone health for decades. Here is contact information:
The Center for Better Bones/Alkaline for Life
605 Franklin Park Drive
East Syracuse, NY 13202
You can google either Better Bones Program or Alkaline for Life.
The online course consists of six parts:
1. Assessment of Bone Strength
2. Development of an Alkaline diet
3. Individualized Nutritional Supplementation
4. Enhance Digestion and Detoxification
5. Exercise Into Bone Health
6. Stress and Worry Reduction
There is lots of online support following the course to guide you. Much of this is in the form of free informational courses. Dr. Brown also has "office hours" for a small fee. The nutritional supplements do not cost more than others of comparable quality, in my opinion. However, Dr. Brown ensures that the supplements she endorses are in highly absorbable forms. Good luck!