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So sorry to hear this for you. Thankfully you did find a doctor who took the time to diagnose you. Did you have lab tests that showed you had Celiac and than an Endoscopy to confirm this? I have gone to multiple MD's to find the source of my Osteoporosis and have been on several medications with no improvement. It is very frustrating. I can imagine being in shock after finding this out. I think many people in our community of Osteoporosis might have this condition also and not know it. Thank you for sharing your story.
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Just as an afterthought, I totally understand the frustration you are feeling with the lack of answers from all the MD's. If you haven't done so already, I would highly recommend finding a good endocrinologist. They're the ones that really get to the root of the problem. Good luck to you!
No, the endoscopy was because I was having trouble with food getting “stuck” halfway through.
She found a small hernia and a Schatzki ring.
But she did mention that she saw the stomach tissue a little inflamed. Pathology came back negative, but I will definitely ask to be tested for Celiac.
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I had a serum celiac panel, which measures the antibodies present with celiac disease. Over 30 is strongly positive, I was at 141. I didn't follow up with endoscopy, mainly because it would have taken 2-3 months to have tests completed and I had to keep eating gluten until then. Blood test is 91-95% accurate and this diagnosis explained all the symptoms I'd been having for years. So, I became gluten free the minute I got that lab report, and continue with my bone strengthening program...just added Prolia to the mix. So far, no side effects at all!