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Narcolepsy Type 1 (Narcolepsy with Cataplexy)
Sleep Health | Last Active: Apr 10, 2023 | Replies (23)Comment receiving replies
@sleepstate I just started Xyrem (not Xywav for complicatd reasons) last night and slept well on a low dose. Wow, you can keep that cataplexy. I'll stay with type 2. It's the emotionally rollercoaster that's getting to me. There's a lot of stress at home with my wife having breast cancer. It's hard to get everything done without stressing out. That gives me overload every few days, and I just shut down for a while.
Best to you my friend.
Replies to "@sleepstate I just started Xyrem (not Xywav for complicatd reasons) last night and slept well on..."
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I'm so sorry, boy you have a lot to deal with. The stress will trigger more problems sleeping and with fatigue. I hope you've found a way and time to release some of it like walking, running or a hobby. I know it's tough to find the energy but the stress will build and eventually start causing more health and mental health problems. Do the Dr's think she'll pull through it? Is she handling it well or no? I sure hope she comes through it well. I can't imagine how hard that is on you both. Shutting down for a bit and walking or doing something to burn off the stress is a good thing to do.
Best to you as well. Let me know how you and she are doing. My thoughts are with you.