Hi Heidi,

My name is Julianne. I have High Factor 8. It is genetic. I got a clot in my leg when I got Covid the first time February of 2020. Vascular surgeon tested me for it. I’ve been over 300 for 3 years and get tested every 3 months.
I have two brothers. I asked them to get tested as the doctors told me it is genetic. They were both positive. My dad died instantly of a clot so it is most likely from his genetic line.
I’ve learned so much about High Factor 8 in 3 years.
If you have siblings …get them tested. My nephews and nieces now have to get tested. Brothers are now starting blood thinners. I am 56 years old. Brothers 50 and 57.
One parent hands this down to their children and so on.
They don’t normally test for Factor VIII and it’s a GENETIC test. Not a normal blood test. So insurance usually do not pay for it. It’s usually around 300.00 at Quest labs.
If I didn’t get Covid in February of 2020….I would never know I had this. Doctors and specialists told me to NOT get vaccinated as they did not know what it would do to clotting. I got clot in lower leg. They put me on Xarelto and I peed blood for 6 months and then I had 6 Kidney stones in a year. I had 6 stents put in my kidney so I wouldn’t throw any clots and they took out a piece of my ureter.
I’ve had Covid documented and tested 4 times.
I am very active and workout everyday. I got off the Xarelto due to my kidneys couldn’t take it anymore. I had no problem for a year and a half and hematology told me to try Eliquis. So I did. After 1 month…I ended up in hospital (this past March)with kidney infection and 2 stones. I am no longer taking the Eliquis. I do better without the blood thinners. I will only go on and bridge off if I have a surgery. Don’t get me wrong …doctors want me on it everyday and you should be. But my kidneys cannot take it anymore. This is just my own body.

It’s very important that you understand how risky it is if you ever have surgery. You can throw a clot in a small vessel or an artery.

Please have your siblings tested.