1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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sarahstuart Sarah Stuart McIlvain | @sarahstuart | Apr 7, 2023
In reply to @yvie "Sarah, what is Tymlos??? Yb" + (show)
@yvie

Sarah, what is Tymlos??? Yb

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Tymlos is a daily injection often into your belly fat. My anxiety level was very high because of the needle. That is over, but I'm still anxious because I'm don't know if it is working. My Registered Nurse neighbor checks on me every day and reminds me to take a deep breathe and trust my doctor.

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gulfcoastwoman | @gulfcoastwoman | Apr 7, 2023

I've been on Prolia for 3 years with no serious side effects. My spine has improved so that it is now in the normal range but my hips have continued to decline. Now they're -3.2. My Dr. is recommending Evenity and I am still collecting more information before I decide.

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yvie | @yvie | Apr 7, 2023
In reply to @debrajean674 "HI it's really good but if you have any kind of teeth feelings anything to do..." + (show)
@debrajean674

HI it's really good but if you have any kind of teeth feelings anything to do with your mouth inside your mouth you can't get it worked once you start taking paroleia you can't even get a abscess pulled so if you have anything wrong with your mouth get it fixed now before you start taking it but otherwise it's pretty good

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I was in HORRIBLE pain with a toothache last week and I went in to my dentist and he said “I cannot pull your tooth because you are on Prolia but you cannot continue to suffer with the pain that you have experienced the last 5 days. So…..he did a root canal even though I am on Prolia. HE HAD NO CHOICE!! Oh well!!!

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yvie | @yvie | Apr 7, 2023
In reply to @yvie "I have been on Prolia for two years with no side effects. My last Dexa scan..." + (show)
@yvie

I have been on Prolia for two years with no side effects. My last Dexa scan classified me as having Osteopenia instead of Osteoporosis. I had my last shot in December and will get the next one in June. I have not broken any bones since I have been on Prolia. Prior to that, a bone in my upper back broke while I was simply standing and talking to my daughter. The pain was intolerable and I was rushed to the hospital and then sent home with three months of bed rest. The second episode occurred the same way only this time it was at the right of my spine. I have had no further occurrences since being on Prolia.

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Thank you Kolika for the hug. If you read my comment today about having to have a root canal while on Prolia, REALLY needed that hug!

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yvie | @yvie | Apr 7, 2023
In reply to @sarahstuart "My mother was on Prolia and lost all of her teeth which depressed her as she..." + (show)
@sarahstuart

My mother was on Prolia and lost all of her teeth which depressed her as she had spent $1,000's of dollars on implants, etc. At this time she was in Assisted Living. My sister, a Registered Dietician spent many hours with the kitchen staff trying to improve the flavor of her meals. In the meantime I was sending her handmade chocolates. She carefully place one on her palette every night so she could fall asleep happily. // I'm taking Tymlos.

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Sarah: my heart breaks for you and your mother. I wish the outcome was different but, fortunately, the two of you dealt with the incredulity of the tragic situation with grace and love for each other.

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yvie | @yvie | Apr 8, 2023
In reply to @yvie "I have been on Prolia for two years with no side effects. My last Dexa scan..." + (show)
@yvie

I have been on Prolia for two years with no side effects. My last Dexa scan classified me as having Osteopenia instead of Osteoporosis. I had my last shot in December and will get the next one in June. I have not broken any bones since I have been on Prolia. Prior to that, a bone in my upper back broke while I was simply standing and talking to my daughter. The pain was intolerable and I was rushed to the hospital and then sent home with three months of bed rest. The second episode occurred the same way only this time it was at the right of my spine. I have had no further occurrences since being on Prolia.

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CMDW: thank you for letting me know that my information was useful. My last goal in life (since I am 85) is to help as many people as I can to accept what is and to be strong until the end.

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Apr 9, 2023
In reply to @shooze "I have been on Prolia for three years and am about to request another med. I..." + (show)
@shooze

I have been on Prolia for three years and am about to request another med. I have experienced severe back pain, constant uti, itching under the skin (from neck to wrist on left arm) and now hair frontal alopecia. Don’t know if all these things are connected but I seemed pretty healthy before Prolia. Is there anyone out there that can recommend another med with relatively fewer side effects? Would love to hear from you.

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Good evening @shooze, welcome to Connect, and thanks for sharing your first post. That's just how it is done on Connect. By sharing each other's experiences we build knowledge that adds power to our health decisions.

I want to respond to your request about Prolia. I also had to request another med and had a consultation with my Mayo endocrinologist. I should mention that I spent two successful years on Tymlos and want to avoid fractures like most of us.

So.....on June 13, 2022, I started on a weekly tablet of Alendronate to replace the Prolia. My issue was that my body couldn't handle the full dose of Prolia twice a year. Its half-life was too long for me and caused a few problems. I am now taking a tablet every Monday morning instead of two infusions a year. I follow the instructions to sit up for 30 minutes after taking the tablet and avoid food or beverages which gives the tablet a chance to dissolve appropriately.
I have absolutely no side effects and feel secure about the shared decision for preventing fractures from osteoporosis.

Please remember that you must transition to a new medication in a timely fashion to avoid fractures. Are there any other issues that concern you at this point?

May you be safe, protected and free of inner and outer harm.
Chris

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doreenr | @doreenr | Apr 10, 2023
In reply to @yvie "I was in HORRIBLE pain with a toothache last week and I went in to my..." + (show)
@yvie

I was in HORRIBLE pain with a toothache last week and I went in to my dentist and he said “I cannot pull your tooth because you are on Prolia but you cannot continue to suffer with the pain that you have experienced the last 5 days. So…..he did a root canal even though I am on Prolia. HE HAD NO CHOICE!! Oh well!!!

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I am also on Prolia and just last week had to have a root canal. I hope we both have no issues after having the procedure.

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1 reply
yvie | @yvie | Apr 10, 2023
In reply to @doreenr "I am also on Prolia and just last week had to have a root canal. I..." + (show)
@doreenr

I am also on Prolia and just last week had to have a root canal. I hope we both have no issues after having the procedure.

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Doreen: we really didn’t have a choice so I am going to try not to worry about it. Was your molar on the top or on the bottom. Mine was on the top next to a Wisdom tooth. Oh well, good luck to both of us. Thanks for your reply.

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1 reply
doreenr | @doreenr | Apr 10, 2023
In reply to @yvie "Doreen: we really didn’t have a choice so I am going to try not to worry..." + (show)
@yvie

Doreen: we really didn’t have a choice so I am going to try not to worry about it. Was your molar on the top or on the bottom. Mine was on the top next to a Wisdom tooth. Oh well, good luck to both of us. Thanks for your reply.

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My tooth that had the root canal was midway upper. We still have to take care of our teeth so you're right in that we had no choice. Odds are greatly in our favor that all will be well so yes, good luck to both of us and try not to worry.

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