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Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Blood Cancers & Disorders | Last Active: Aug 12 7:56pm | Replies (44)Comment receiving replies
@cheft Welcome to Mayo Clinic Connect. I can definitely relate to being scared when you get this type of news. In my situation, being the overachiever that apparently I am, I went from MGUS to SMM to active myeloma in less that 2 years! It was a surprise to everyone, including my medical team, and added to existing medical concerns.
That's not saying this will happen in your case. What you have heard, about the smoldering myeloma staying in its spot for years, is correct. If you feel confident in your team, ask their opinion. Being in the Virginia area, you could also head towards Mayo Clinic for a second opinion. Here is the link to get started: http://mayocl.in/1mtmR63
How are you doing today?
Ginger
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I’m in Twin Cities MN. Rochester MN Mayo is 2 hours away. I did look up trials that may be available however they seem focused on high risk smoldering myeloma. I have been told I’m currently low risk but not sure how they decide that. Oncologist said I have 25% chance in next two years of going to active myeloma. My effected marrow went from 5-7% last year to 10% last week. I am going to talk to the Mayo docs for second opinion. As far as how am I? Ok I guess, just worried about if it gets worse in next year or two how successful is treatment in keeping me around longer? And how long can I expect to live with active?